Categories
Response stories

Breaking barriers: combatting sexual orientation prejudice in Azerbaijan

Murad (name changed), a 20-year-old science student at a university, has faced immense challenges in his young life. At the age of 15, he discovered his sexual orientation when he fell in love with a friend. This realization brought him face-to-face with the harsh realities of prejudice and discrimination. As the only child of elderly parents, Murad took great pains to shield them from potential rumors and the societal backlash that could devastate them.

Despite his efforts to maintain a low profile, Murad’s secret was threatened when a classmate discovered his truth. The classmate menacingly suggested revealing Murad’s sexual orientation to his family, a prospect that filled Murad with dread. For Murad, the thought of his parents suffering because of his identity was unbearable.

In his distress, Murad reached out to REActor. Understanding the gravity of the situation, REActor referred Murad to a lawyer for immediate assistance. The lawyer arranged to meet Murad at the NGO Struggle Against AIDS (SAAPU) office to discuss the best course of action.

Following the lawyer’s advice, Murad invited the threatening classmate to a meeting. Though initially hesitant, the classmate agreed to attend. During the meeting, the lawyer calmly and firmly outlined the legal repercussions of mental abuse and blackmail. Confronted with the serious consequences of his actions, the classmate had a change of heart. He apologized to Murad and assured him that he would respect his privacy going forward.

Murad’s story highlights the fundamental importance of privacy as a human right. Privacy underpins freedom of association, thought, and expression, as well as freedom from discrimination. While different countries and individuals hold varying views on privacy, the rights of all human beings must be safeguarded, regardless of the obstacles they face. And thanks to the ongoing support and advocacy of organizations such as SAAPU and the work of REActors, the situation in the country is changing.


Also read:

Bridging borders: battling stigma in Bosnia and Herzegovina

“I have my right to work”: the resilience of a person living with HIV working in a hospital in North Macedonia

Categories
Response stories

The story of a pregnant girl fighting for her health in Ukraine

Hanna (name changed) went to a gynecologist at her place of residence because of pain in her lower abdomen. After an examination, she was diagnosed with a threatened miscarriage in the short term. After all the necessary tests, it turned out that the girl was HIV positive. She was not informed about this in an incorrect form, and instead of support and measures to preserve her pregnancy, she was strongly advised to terminate the pregnancy. The doctor argued that the child would be born sick, with a positive HIV status and possibly with other developmental disabilities.

Hanna was shocked by the doctor’s reaction and left without registering for pregnancy. At home, she started bleeding from stress and was quickly taken to the hospital. There, after learning about her positive status, she was still provided with help, although they hinted that she was a “special” patient and it would be nice to “pay”.

By chance, the girl found the organization and asked for help. The REActor introduced her to a social worker who began to take care of her, and they discussed an action plan to meet her needs. The REActor very correctly and professionally advised the girl on all issues related to her positive status, and accompanied her to the infectious disease specialist of the city AIDS center, where she was registered and prescribed ART therapy without any problems.

In addition, Hanna was offered a consultation with the organization’s psychologist to stabilize her psychological state and legal advice. The client continues to receive psychological counseling to stabilize her condition. She did not want to write a complaint in order not to return to a state of stress. The girl often visits the organization, receives therapy, and tries to improve her personal life.


Also read:

“I have my right to work”: the resilience of a person living with HIV working in a hospital in North Macedonia

Let’s stop discrimination: protecting children’s rights in kindergartens in Uzbekistan

Categories
Response stories

“I have my right to work”: the resilience of a person living with HIV working in a hospital in North Macedonia

A person living with HIV who takes antiretroviral medications can work. In North Macedonia the Law on Labor Relations and the Law on the Prevention and Protection from Discrimination both prohibit discrimination based on health status, which includes HIV. However, in this case, an attempt was made to prohibit a person living with HIV from continuing to work at his place of employment, a city hospital in one Macedonian town.

“Don’t come to work.”

In August 2023, the person underwent an HIV test at the hospital where he works as auxiliary medical staff. When the test came back positive, the information was shared with all of his colleagues. That same day, he received a call from a doctor informing him that he should not report to work the following day. At the same time, the individual had other health issues, so he sought medical assistance at the same hospital where he had worked for almost 35 years. The same doctor who informed the individual that he should not report to work declined to examine him. The individual left to seek medical assistance in another place. In the meantime, the person started taking antiretroviral medicines. 

After the visit to the hospital, the person took medical leave due to additional health conditions that necessitated bed rest. After his health issues were resolved, he wanted to return to work. However, his family doctor and the medical commission, which is in charge of awarding medical leave, continued to extend his medical leave without his consent and any specific reason, citing the fact that he is a person living with HIV. Soon after, he was directed to a doctor, who specialized in labor medicine, to evaluate his ability to work. According to the relevant legislation, if a person living with HIV is on medical leave for 10 months or less, he or she must have an assessment to determine his or her ability to work.

REAction and outcome

A REActor met with the individual and suggested he obtain a report from his doctor at the Clinic for Infectious Diseases and Febrile Conditions, stating that he is well and has no reason not to work. After receiving the report, the Association Stronger Together from Skopje filed two complaints: one with the director of the hospital where the individual works and one with the state Health Insurance Fund. The letter to the director described the violations committed by the staff, such as the denial of healthcare, the disclosure of medical data, and insults directed at the employee, and demanded that the hospital should initiate an investigation and punish the perpetrators, while also undertaking measures to stop the harassment of the employee. The Hospital was also notified that Stronger Together and other civil society organizations would be ready to provide legal support to the person with HIV should he decide to take the matter to court. The letter to the Health Insurance Fund indicated that the family doctor and the medical commission are providing medical leave to those who don’t need it and by default, spending the Fund’s money without justification; additionally, the letter enunciated that the extension of the medical leave was without the patient’s consent. Following the complaints, there was a reaction by the Hospital, which allowed the person to return to work and he has not reported any other breaches of his rights afterward.


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Victory in the protection of privacy: the history of dormitory housing in Uzbekistan

Let’s stop discrimination: protecting children’s rights in kindergartens in Uzbekistan

Categories
Response stories

Bridging borders: battling stigma in Bosnia and Herzegovina

In Bosnia and Herzegovina, a married couple faces a complex legal battle with profound implications. Bekir (name changed) and Aurore (name changed), originally from Bosnia and Rwanda respectively, have encountered unexpected challenges in their quest to build a life together in Bosnia and Herzegovina. This story unfolds against the backdrop of immigration laws, health problems, and the pursuit of justice.

Their journey began with a serendipitous meeting in Rwanda, where Bekir was engaged in a construction project. Following their marriage in Rwanda, the couple encountered bureaucratic hurdles as they sought to establish a life together in Bosnia. Despite obtaining visas, Aurore’s HIV-positive status became a stumbling block in her application for permanent residency, with authorities citing concerns about public health.

Undeterred, the couple sought legal assistance to navigate the asylum process, recognizing it as a lifeline for their future together. With the support of a knowledgeable immigration lawyer, they are now advocating for refugee status based on principles of family reunification and the best interests of their child. Their case underscores the humanitarian imperative of preserving family unity and upholding international human rights standards, as enshrined in the Convention on the Rights of the Child. By leveraging international human rights principles, they aim to secure refugee status and a pathway to a secure future in Bosnia and Herzegovina.

Moreover, Aurore’s HIV status not only adds a layer of complexity to their case but also highlights pervasive discrimination and stigma. Beyond legal battles, the couple is fighting for access to adequate healthcare, submitting requests to relevant authorities to ensure Aurore’s right to tertiary medical care following international standards. They submitted multiple requests to the relevant ministries, aiming to secure her right to tertiary medical care, which is crucial for her health and the well-being of their family.

The perseverance of Bekir and Aurore, along with the strategic legal advocacy provided by their lawyer, ultimately paid off. Aurore was granted refugee status, marking a significant victory in their journey. This allowed her to receive a refugee card, health insurance, and a personal identification number (JMBG), ensuring her access to essential services. With the legal hurdles behind them, the couple can now focus on building their life in Bosnia and Herzegovina.

This case not only represents a personal victory for Bekir and Aurore, but also showcases the transformative power of legal advocacy and the importance of partnerships between NGOs like Partnerships in Health and skilled legal professionals. Their combined efforts helped secure justice, challenge discrimination, and uphold human rights, demonstrating how resilience and expert support can overcome even the most daunting obstacles.


Also read:

Finding support: Vardan’s story from Armenia

“I have my right to work”: the resilience of a person living with HIV working in a hospital in North Macedonia

Categories
Response stories

Violation of confidentiality of a patient at an AIDS center in Kazakhstan

Marat (name changed) faced a serious violation of his privacy and data protection rights. Due to his employment, he did not visit the AIDS Center where he was registered. A nurse from the facility visited him at his place of residence, but did not find the man at home. As a result, she left a note in the door, urging him to come in for a scheduled test. Neighbors who read the note misinterpreted the information about Marat’s HIV status and began to stigmatize him as “contagious”.

Leaving the note with information about Marat’s HIV status in a visible place led to a violation of his right to privacy and protection of personal data. It also resulted in serious social consequences, including stigmatization by his neighbors. According to the law, information about HIV status is strictly confidential and cannot be disclosed without the patient’s consent, and violation of these norms entails liability and may lead to legal consequences for the medical institution and its staff.

To protect his rights, Marat turned to REActors for help. In response to the nurse’s unlawful actions, REActors prepared and wrote a complaint to the AIDS Center.


Also read:

Finding support: Vardan’s story from Armenia

Confidentiality of people living with HIV in Uzbekistan: care for loved ones and protection of rights

Categories
Response stories

Finding support: Vardan’s story from Armenia

In early January, one of the national REActors in Armenia received an unexpected call from Vardan (name changed), one of his former mentees. The guy reported that he was kicked out of his house after his relatives found out about his positive HIV status (a neighbor saw him receiving ART in the hospital and told his family everything). This left Vardan homeless and unsupported.

The REActor responded immediately by inviting Vardan to his home. He decided to help the client not only by providing temporary shelter but also by supporting him in his difficult situation – the problem was not solved just by Vardan staying with him temporarily. There needed to be a change in his family’s attitude.

In the morning, the REActor contacted the boy’s mother and frankly told her about her son’s HIV status. Initially, she reacted negatively, but after a serious conversation and thinking about the situation, the woman changed her opinion. The mother was ready to take her son back and support him.

 The REActor accompanied Vardan to his family, where they discussed the difficult situation together and overcame their differences. As a result, the boy was accepted back and everyone expressed their willingness to support him in his fight against HIV.

After that, the REActor contacted the National Center for Infectious Diseases and reported what had happened. They promised to take steps to help patients like Vardan avoid similar unpleasant situations in the future by providing them with protection and support.

This story demonstrates the importance of support and understanding in the fight against HIV, and the power of community intervention to address difficult life situations. 


Also read:

Entitlement or preference? The world celebrates Health Day

Confidentiality of people living with HIV in Uzbekistan: care for loved ones and protection of rights

Categories
News Response stories

Entitlement or preference? The world celebrates Health Day

April 7 marks World Health Day, founded by the World Health Organization (WHO) in 1950. This day recalls the importance of health for all people in the world and emphasizes the need for access to skilled health care as a fundamental human right. In this context, providing life-saving services such as opioid substitution therapy (OST) to people from key populations is critical. This approach enables patients to manage physical dependence, reduce the risk of transmission of infectious diseases (e.g. HIV or hepatitis), and improve quality of life.

However, despite the proven effectiveness of OST, many people around the world (including in the Eastern Europe and Central Asia region) face barriers to accessing this treatment due to stigmatization, lack of access to health services, or legal restrictions. This creates serious obstacles for those in need of assistance.

For example, recent changes to the Ministry of Health’s January 24 Order to the opioid substitution therapy program in Georgia have made significant adjustments. Under the previous rules, patients participating in the program had the opportunity to receive a two-day dose of medication if they were unable to visit a healthcare facility, and this dose could be picked up for them by a family member or other authorized person. However, under the changes made, this right has been limited and patients or their authorized representatives must now visit the service center daily.

The changes also affected the ability to provide patients with pharmaceuticals in special cases. Previously, there was an option to receive a five-day supply of medication when long-term home treatment exceeding two months was required, or a seven-day supply for those with a pronounced disability or active tuberculosis. However, the amendments have completely abolished this exceptional regulation. Under the previous regulation, patients could also be given a dose if they had to move around the country (the principle of business travel). The innovations have abolished this regulation and now, even in cases of exceptional need such as business travel or ill health, patients can only be given a one-day dose.

Kazakhstan also has a serious problem with violations of the rights to health care and health maintenance for people who use psychoactive substances. These problems have been identified, including through the REAct, on appeals related to obstacles in accessing medical services for clients. This situation covers several aspects:

– Lack of access to free medical care, including tests and abortions, for persons without compulsory social health insurance.

– Limited access to a guaranteed amount of free medical care for people who use psychoactive substances.

– Insufficient drug supply and diagnosis of diseases among persons in detention centers.

According to the Order of the Minister of Health of the Republic of Kazakhstan from September 23, 2020, № KR DSM-108/2020, treatment of people who use psychoactive substances is carried out within the guaranteed volume of free medical care in regional Mental Health Centers (MHC). Anonymous treatment is available only on a paid basis. However free medical care does not provide the necessary range of services for social, psychological, pedagogical, labor, cultural, economic, and legal support for people from the community.

The theme of this year’s World Health Day is “My Health, My Right” and aims to support and recognize the right of everyone, wherever they are, to access high-quality health care, education and health information, and freedom from discrimination. This means that it is worth taking another opportunity to draw public attention to such violations of people’s rights to quality and timely health care and the need to develop a model that complies with human rights principles and international standards while taking into account the needs of patients, their families and the interests of organizations providing addiction treatment services. And legislate to guarantee the provision of a full range of assistance for the treatment and rehabilitation of everyone who needs it. 

Health is everyone’s right, as is equal access for all people to qualified care.


Also read:

Showing strength: International Transgender Day of Visibility

March 8 in Eastern Europe and Central Asia: the struggle for the rights of women from vulnerable groups continues

Categories
Response stories

Confidentiality of people living with HIV in Uzbekistan: care for loved ones and protection of rights

The client is a person living with HIV and has been registered at an AIDS center since 2020. He lives in X district of A city together with his spouse and two minor children. The family receives a disability pension and is on the low-income list. One day, on their return from the bazaar, the husband and wife learned from a neighbor that the secretary of the Mahali committee had invited them to a meeting. The woman was not told the reason for the conversation, but the couple’s HIV status was revealed to her. This breach of confidentiality angered them and the couple slowly asked that information about their disease not be disseminated, as it could hurt their children and was against the law.

Thereafter, the REActor entered into a dialog with the Mahali committee secretary. He emphasized that disclosure of information about the status of HIV-positive people violates their rights to confidentiality. The family was advised to contact a lawyer or human rights organization to advocate for their interests.

This story underscores the importance of protecting the confidentiality of HIV status for the well-being of the family. No one should suffer from disclosure of their medical status, and everyone has the right to have their personal information protected.

Original Source (in Russian)


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Public appeal to the Ministry of Health of Georgia: assessment of changes in legislation on substitution therapy program

Discussions on strategies to combat HIV/AIDS and tuberculosis brought together key national experts in Georgia

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News

Showing strength: International Transgender Day of Visibility

March 31 is International Transgender Day of Visibility, which is dedicated to supporting, recognizing, and raising awareness of the rights of transgender people around the world. It is a time to raise important issues related to the transgender community and stimulate public dialog about the importance of respect and equality.

In the Eastern Europe and Central Asia (EECA) region, the visibility and rights situation for transgender people remains complex and multifaceted. Laws and policies in individual countries restrict community rights, including access to health care, gender reassignment, and protection from discrimination. In 2023 alone, national REActors documented 1,109 complaints from members of the LGBTIQ community in the region. The most common violations of the rights of transgender people are discrimination, insults, harassment, threats, and, alas, often it even comes to attacks. An example happened in Armenia with a transgender girl, an activist, and an employee of a local NGO. While testing and counseling a client for HIV, she was attacked by a stranger. With the participation of REActors, it was possible to record the facts of the crime and ensure the initiation of a criminal case. Another egregious case occurred in Tajikistan – a transgender woman was detained without reason by law enforcement officials and her personal belongings were confiscated. Interrogations began. This put the victim in an extremely difficult situation. REActors were able to provide legal defense by finding a lawyer willing to take on the case and defend her rights. They were also able to raise the necessary funds for the client to leave the country safely. Thanks to their support, after two months, the case was closed and the belongings were returned.

The fight to protect the rights of transgender people in the EECA region remains relevant and important. A lot of work is still needed, but the situation is gradually changing for the better, mainly due to the active role of transgender people themselves in this process. They invest a great deal of interest in creating changes that directly affect their lives and well-being (because for the majority of authorities, who are usually people who are not uncomfortable with gender conformity, alas, these issues may seem less important or irrelevant). Local non-governmental organizations and community groups are also actively working for the benefit of transgender people in the EECA region, providing them with support, information, and protection from discrimination and violence. These efforts play an important role in raising awareness and creating a safe and supportive environment for transgender people. It is important to continue to mobilize public opinion, give support to the transgender community, and work to create laws and policies that protect their rights and dignity.

On International Transgender Day of Visibility, each of us can do something important to show our support. Here are a few ways you can do that:

1. Education and awareness: learn more about transgender issues, history, and the fight for transgender people’s rights. The more we know, the better we can support their fight for equal rights and opportunities.

2. active listening and support: listen to the stories and experiences of transgender people without judgment. Support them by expressing your support and solidarity. Have an open dialog and be willing to listen to their needs and experiences.

3.         Participate in events: take part in events to commemorate International Transgender Day of Visibility. These can be rallies, public lectures, marches, or other events to raise awareness and support for the transgender community.

4. Utilize social media: share transgender people’s stories, relevant articles, and resources to spread the word about March 31 and the importance of supporting this community.

5.         Financial support: support organizations and charities working to benefit the transgender community. You can make donations or participate in fundraisers to help fund support and advocacy programs.

6.         Fight for rights: engage in active resistance to discrimination and violence against transgender people. Support legislative initiatives and policies to protect their rights and ensure equality before the law.

7.         Respect Identity: respect and recognize everyone’s gender identity. Use correct pronouns and respect their choice of name and expression of their gender.

Showing support and solidarity with transgender people is an important step towards creating a society where everyone can feel respected and protected, regardless of gender identity.


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March 8 in Eastern Europe and Central Asia: the struggle for the rights of women from vulnerable groups continues

HIV Criminalization Awareness Day: fighting for justice and understanding

Categories
Response stories

Public appeal to the Ministry of Health of Georgia: assessment of changes in legislation on substitution therapy program

The Public appeal of Georgian NGOs to the Ministry of Health reflects serious concerns about the recently introduced changes to the legislation regulating the substitution therapy program. Drug policy experts, as well as representatives of public associations, raise important questions about how these changes will affect the rights and quality of life of patients enrolled in this program.

According to the change made on January 24 of this year in Order No. 01-41/N of the Minister of Labor, Health and Social Protection of Georgia “On Implementation of Substitution Treatment of Opioid Addiction”, the rules of administration of the substitution program were regulated differently.

According to the existing regulations, patients included in the substitution treatment program, in case of inability to report to the drug institution, could receive/withdraw the drug intended for substitution treatment for a maximum of 2 days with the help of a family member or other authorized person. Under the changes, beneficiaries have been restricted from this right, and they or their proxy must go to a service center every day. The change also affected the possibility of providing the patient with a pharmaceutical product in special cases.

According to the revision effective until January 24, in case of need for long-term (more than 2 months) treatment at the patient’s apartment, it was possible to receive 5 days’ supply, and to persons with pronounced disabilities and active form of tuberculosis, it was possible to receive the product in the amount of 7 days’ supply at the same time. With the implemented changes, the said exceptional regulation was canceled altogether.

Also, the current order no longer provides for the possibility of receiving a dose of no more than 4 days for the patient in the case of justifying the reason for moving within the country (the so-called business trip principle). With the new change, even in the conditions of any exceptional and objective need, (including during a business trip or due to health conditions) it is possible to provide only 1-day allowance to patients.

As a result, it is important to ensure consultation and discussion with health and addiction professionals and experts. This will help to develop a model that is consistent with human rights principles, and international standards and that carefully considers the needs of patients, their families, and the interests of organizations providing addiction treatment services.

Center for Social Justice

Georgian Harm Reduction Network

Alternative Georgia

Georgia Network of People who Use Drugs (Genpud)

New Vector

Association of Narcologists of Georgia

Public Union “Bemons”

Phoenix 2009

National Network for the Protection of Human Rights

Association of Psychologists and Psychotherapists

Rubicon

Information and Medical Psychological Help Center

Association HERA XXI

“Hepa Plus”

Original Source


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Tajikistan has taken the first step to protect the rights and eliminate discrimination of citizens living with HIV

Celebrating LGBTIQ history month in Eastern Europe and Central Asia: a journey of resilience and progress

Categories
Response stories

The fight for patients’ rights has led to changes in a hospital in Kazakhstan

In the city of N, in the complicated trauma department of the city clinical hospital, an event that shook one woman’s life and led to major changes in the institution’s policies took place.

As part of his outreach work, the REActor visited a client who had been hospitalized the previous day in the department. During the encounter, he noticed a blue plastic bracelet worn on the client’s arm containing her personal information, ward abbreviation, room number, and information about her HIV-positive status. When asked by the REActor about the significance of this information, the client explained that bracelets with similar data were common among patients and that the information about her HIV status had been added after the ward manager made rounds.

The REActor attempts to have the confidential information removed from the bracelet was resisted by the ward manager, who asserted that he was well versed in clinical protocol and did not consider it necessary to take into account the comments of “amateurs”.

Having understood the situation, the REactor sent a complaint to the chief physician of the hospital. Thanks to this complaint, an immediate order was given to remove confidential information from the patient’s bracelet. The department head was reprimanded and then fired due to multiple prior violations, including disregard for patient rights.

This story is an example of how determination and fighting for justice can lead to systemic change. It emphasizes the importance of respecting patients’ rights to privacy and protection from discrimination based on their health. The REActor was able to bring change to a previously unjust system, demonstrating that everyone has the right to have their interests respected and protected.


Also read:

Georgia’s new legislation on substitution therapy program raises public concerns

Protecting the rights of HIV-positive couple in Uzbekistan: comprehensive assistance and solutions

Categories
News Response stories

Discussions on strategies to combat HIV/AIDS and tuberculosis brought together key national experts in Georgia

A civil society forum on HIV/AIDS and tuberculosis, organized by the United Coordinating Council of the Country for Actions Against HIV/AIDS, Tuberculosis and Malaria, was held on 26 February in Tbilisi, Georgia. The event brought together important participants and experts to discuss plans to strengthen the health system and ensure the sustainability of programs to combat these diseases.

Maka Gogia, Georgian Harm Reduction Network, and David Otiashvili, NGO Alternative Georgia facilitated the forum, which provided a platform for the exchange of views and experiences. The participants discussed current initiatives, the role of civil society in their implementation, and the directions of the updated strategic plans to fight HIV/AIDS and TB. Also, during the forum, the national REActor presented relevant information regarding the REAct annual report.

The forum touched upon various aspects of the problem, including financing of programs, new approaches to prevention, and issues of access to medicines. The event was attended by representatives of both governmental and non-governmental sectors, as well as international organizations, including the Global Fund. The prospects of work under the regional project #SoS_2.0 for 2024, the effectiveness of programs to prevent HIV transmission to men who have sex with men, and other important issues related to infectious disease control were also discussed.

At this meeting CSOs and drug user community talked about existing drug policy and new restrictions within OST program that significantly worsens the condition of disabled people and other patients with severe chronic diseases. With the changes, the standards of legal protection of the persons who are employed deteriorate, and it is possible that business trips are of decisive importance for the performance of their professional activities, overall, it reduces the degree of integration of program patients into society and worsens their situation. Participants agreed to join their efforts to continue advocate activities to remove restrictive regulation in the program.

According to the participants, the forum was a significant step towards a more effective fight against HIV/AIDS and tuberculosis, providing a fruitful dialog and exchange of experience among various stakeholders.


Also read:

Public appeal to the Ministry of Health of Georgia: assessment of changes in legislation on substitution therapy program

Georgia’s new legislation on substitution therapy program raises public concerns

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Response stories

A woman’s journey through the Ukrainian healthcare system

Oksana (name changed) sought a consultation with a vascular surgeon. After an examination, the doctor referred her for an ultrasound of her lower extremities, which was to be done at the same hospital. She waited in line outside the ultrasound room. After a while, a nurse came out, looked at the referral, and said that she had to wait, the ultrasound would be the last one to be done. When she asked why, she was told: “Don’t you know your diagnosis?”

After that, Oksana carefully re-read the referral and saw that it had a code B-20. Without having an ultrasound, she returned to the doctor to ask why he had indicated an HIV diagnosis. The doctor began to say in a humiliating and insulting manner that they (medical workers) should know who they are working with, and that he was not obliged to risk his life. The doctor was talking with the door of the office open, and people were sitting in the corridor outside the office.

The REActor provided a consultation, during which the rights of people living with HIV were explained. She was also offered assistance in writing a complaint against the doctor’s actions, but Oksana refused to write a complaint. Then, at the client’s request, she was accompanied to the Regional Hospital, where she received a consultation with the right specialist, underwent the necessary examinations, and is now undergoing outpatient treatment prescribed by the doctor.


Also read:

Protecting the rights of HIV-positive couple in Uzbekistan: comprehensive assistance and solutions

Victory in the protection of privacy: the history of dormitory housing in Uzbekistan

Categories
Response stories

Protecting the rights of HIV-positive couple in Uzbekistan: comprehensive assistance and solutions

The AIDS Center approached ISHONCH VA HAYOT with an unusual case that became a challenge for a young couple about to get married. In the process of preparing documents for the civil registry office, the two of them were found to be HIV positive. This fact, which was previously unreported, was unauthorized disclosed by medical professionals, causing rumors and condemnation in the surrounding community.

The couple approached the NGO ISHONCH VA HAYOT to ask for help. National REActors provided them with comprehensive support:

– Counseling and information: the young couple received detailed counseling about HIV infection, treatment options, and available support resources. This helped them realize that they were not alone in their situation and that there are many resources for people living with HIV.

– Psychological support: the NGO provided the young couple with psychological support to help them cope with emotional stress and fear of public opinion. This was an important step towards restoring their self-esteem and confidence.

– Peer support group: REActors referred them to a peer support group for people living with HIV where they could socialize and share experiences with others facing similar challenges. This created a strong supportive environment for the couple.

– Legal assistance: the young couple received legal assistance from NGO specialists who helped them protect their rights and deal with the liability of medical professionals for improper disclosure of confidential information.

This story demonstrates the importance of supporting and protecting the rights of young people facing HIV, as well as the role of NGOs in providing comprehensive assistance and addressing such situations.

Original Source (in Russian)


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Georgia’s new legislation on substitution therapy program raises public concerns

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March 8 in Eastern Europe and Central Asia: the struggle for the rights of women from vulnerable groups continues

March 8, International Women’s Day, a time not just for congratulations, but an opportunity to once again draw the attention of global society to key issues related to the protection of women’s rights. In the countries of Eastern Europe and Central Asia (EECA), women from vulnerable groups face daily (!) special problems specific to this region and challenges in fighting for their rights. These include access to health care, education, protection from discrimination and violence, and the ability to participate in public life. In the last year alone, REActors documented 1,109 referrals, the majority of which were from women from vulnerable groups.

Women facing HIV often face double discrimination – because of their gender and the stigma associated with the virus. A woman can be evicted without explanationunfairly accused of HIV infection, and psychologically traumatized. In many countries in ЕЕCA, access to adequate medical care and social support for this group remains inadequate.

Female sex workers also face serious challenges, including violenceassault by partners or relatives, exploitation, and lack of protection from government authorities. Sexual violence crimes, particularly when the victim is a sex worker and the perpetrator is a government official, are exceptionally difficult due to the complexity of provable charges, which remain largely victim-dependent, and the lack of the necessary framework to reduce the risk of retraumatization of the victim. Laws about sex workers often discriminate against them and fail to provide the necessary rights and protections. To date, none of the Central Asian countries have ratified the Istanbul Convention.

In EECA countries, LGBTIQ women often find themselves in a particularly vulnerable situation due to double discrimination based on gender and sexuality. They may be intimidated, physically abused, threatened and harassed.

Women who use drugs also face the threat of violence, poverty, and lack of access to health and social services. In many countries in the EECA region, drug policies put additional pressure on women and their rights.

March 8 is not just a holiday, but also a day of struggle for rights. It should be noted that it is important not only to be aware of them but also not to be afraid to fight for them. Many women from vulnerable groups may feel isolated or helpless due to stigma and discrimination, but uniting and solidarity can make their voices stronger.

Reaching out to national REActors and non-governmental organizations (NGOs) specializing in women’s rights and the protection of vulnerable groups is also important. They are the ones who can provide counseling, legal, and psychological support, and other services to help protect women’s rights. Through prompt intervention, the woman is not left alone with the problem or her abusers. Her voice becomes stronger and the fear of fighting for herself recedes because she has much-needed, relevant support. 

Also, in addition to individual action, organizing into collectives and social movements is important. Collective strength can be decisive in fighting for changes in laws, policies, and public opinion about women’s rights and interests.

It is important to remember that no one should be left alone in the fight for their rights. March 8 is not just a tradition from the Soviet past to give flowers. It is a real opportunity for women from vulnerable groups to find support, inspiration, and strength to continue their struggle. Together, we can make greater progress towards equal rights and opportunities for all women, regardless of their social status or identity.


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Response stories

Denial of access to specialized medical services for a woman living with HIV in Kazakhstan

Alla (name changed), a woman living with HIV, faced serious violations of her access to health services and rights. She was diagnosed with HIV 14 years ago and recently went to a public polyclinic to seek help for increasing symptoms of depression. However, she was denied access to a psychotherapist and appropriate medication.

Alla’s rights were violated by the medical staff of the polyclinic, namely the therapist in charge, who denied her the necessary examination and treatment. Such behavior violates the patient’s rights to receive medical care and constitutes discrimination on the basis of HIV status.

According to the legislation, all citizens have equal rights to medical care, regardless of their HIV status. Medical institutions are obliged to provide the necessary treatment and counseling without discrimination and stigmatization of patients. Denial of medical care on the basis of HIV status is a direct violation of these rights and norms.

To protect her rights, Alla turned to REActors for help. In response to the unlawful actions of the polyclinic, REActors prepared and wrote a complaint to the primary health care center with a request to take measures to restore Alla’s rights and ensure proper medical care.


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Public appeal to the Ministry of Health of Georgia: assessment of changes in legislation on substitution therapy program

Georgia’s new legislation on substitution therapy program raises public concerns

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News Response stories

Georgia’s new legislation on substitution therapy program raises public concerns

On February 15, a press conference organized by the Georgian Harm Reduction Network was held in Tbilisi, Georgia, on the problem of access to treatment for people who use drugs. The main issue was changes in legislation regulating opioid substitution therapy (OST).

Drug policy organizations, health experts, and public associations expressed their concern about the changes made to the legislation on OST. They believe that such changes will not adequately protect the rights of patients participating in the program.

It was noted at the event that the innovation will significantly worsen the situation of people with disabilities and other patients with severe chronic diseases. According to the new rules, doses will no longer be provided in case of the need to move within the country (the principle of a business trip). Even in cases of justified and objective reasons (including travel or health problems), only a one-day dose will be available to patients.

Nongovernmental organizations call on representatives of the Ministry of Health of Georgia to open a dialogue on this issue. They propose to create an inclusive platform where public and professional organizations, as well as health experts, could discuss the problems of OST programs and jointly develop a model based on human rights principles, and international standards and taking into account the interests of patients, their families and medical institutions.


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News

Global challenges, local responses: how the Eastern Europe and Central Asia region fights discrimination

On March 1, Zero Discrimination Day is celebrated around the world to draw attention to the problem of discrimination in all forms and manifestations and to take action to overcome it. It was initiated by UNAIDS, the Joint United Nations Program on HIV/AIDS, and was first observed in 2014. And 10 years later, this day again reminds us of the need for a more just and equitable society where everyone can feel protected and respected regardless of their characteristics and identity.

Zero Discrimination Day is important not only as a moment of awareness of discrimination but also as an opportunity to emphasize the importance of protecting human rights for all without exception. The key message is that everyone, regardless of race, sex, sexual orientation, gender identity, religion, or other characteristics, has inviolable rights that must be protected and respected. This day helps to mobilize public awareness and strengthen the efforts of citizens, human rights organizations, government agencies, and other stakeholders to combat discrimination and promote human rights. Today, in all regions of the world, various activities, including educational campaigns, seminars, conferences, forums, and rallies, are organized to raise awareness of the problem of discrimination and promote respect for differences. This includes the Eastern Europe and Central Asia (EECA) region.

According to the latest data presented in the REAct Regional Digest for 2023, the issue of discrimination remains one of the most pressing challenges for representatives of vulnerable groups to HIV/AIDS. Based on referrals in all 14 countries in the region where REActors work, the key trends and areas where this offense has been most acute over the past year include:

– Social exclusion and stigmatization: members of vulnerable groups face social exclusion and stigmatization by those around them. They may be rejected by their families, friends, and society at large due to misunderstanding, prejudice, and lack of provable information. 

– Denial of health care: some health care facilities or medical personnel may refuse to provide services to people from the community because of fear of infection, bias, or lack of training on issues such as HIV or viral hepatitis.

– Problems at work: according to national REActors statistics, vulnerable people may also face discrimination in the workplace, including dismissal and denial of benefits or wages.

– Access to education: key populations are sometimes denied access to educational institutions because of their (or a close relative’s) HIV status, which can lead to restrictions on learning and career opportunities.

– Biased public opinion: communities may face biased opinions and myths, for example, about HIV status or the LGBTIQ movement in society, which leads to additional disadvantages and discrimination.

The fight against discrimination requires a comprehensive and systemic approach at different levels of society. According to REAct observations, in the EECA region the main focus should be on:

– Legislation and reforms in the justice system: the adoption of laws and policies that protect rights and prevent discrimination based on any characteristic, including race, sex, sexual orientation, gender identity, disability, etc. These laws must be effectively implemented and accompanied by training and monitoring measures. As should ensure fair and impartial adjudication of discrimination cases in the courts.

– Education and awareness: conducting educational campaigns and programs that will help raise awareness of discrimination, and develop tolerance and respect for differences. This includes inclusive lessons in schools, training for employers, and events for the public.

– Supporting victims of discrimination: promoting support and protection mechanisms for those who experience discrimination. This can include legal, and psychological support and access to social services and medicine.

– Working with communities and civil society: it is important to create conditions for active participation, such as supporting non-governmental organizations working in the field of human rights.

– Working with employers and businesses: ensuring equal opportunities in the workplace and preventing discrimination in hiring, promotion, and dismissal. This includes educating employers about the principles of equality and fairness and establishing mechanisms for employee complaints and appeals.

On Zero Discrimination Day, human rights advocates actively advocate for effective laws and policies to prevent discrimination and protect the rights of all people, including vulnerable groups. But let us remember that not only on March 1, but every day is an opportunity to draw attention to this issue and promote a society based on equality, justice, and respect for human rights.


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Celebrating LGBTIQ history month in Eastern Europe and Central Asia: a journey of resilience and progress