Author: velyunsky

Solidarity and action: International AIDS Candlelight Memorial

Post author By velyunsky
Post date May 19, 2024

International AIDS Candlelight Memorial is held annually on the third Sunday of May in many countries around the world. This day was first celebrated in 1983 in the American city of San Francisco. At that time, a symbol of the movement against this disease appeared – a bright red ribbon attached to clothing and colorful quilts made of fabric scraps in memory of people who died prematurely because of AIDS. The red ribbon was created in 1991 by California artist Frank Moore. Every year on this day, people around the world pin it to their clothes to express solidarity with those affected by AIDS and to support efforts to reduce stigma and discrimination against people living with HIV.

According to the latest UNAIDS statistics, approximately 40 million people are living with HIV worldwide. Thanks to advances in modern medicine, HIV infection has become a manageable chronic disease: antiretroviral therapy (ART) allows people with HIV to live full lives. Nevertheless, in 2022, AIDS will claim the lives of 600,000 people worldwide. The situation with HIV remains particularly challenging in the Eastern Europe and Central Asia (EECA) region. According to UNAIDS, about 1.7 million people are living with HIV, and in recent years there has been an increase in new infections, with ART coverage available to only about 60% of those in need. Despite the existence of treatment and national strategies to ensure access to ART, many barriers remain in EECA that limit ART coverage and lead to an increase in the number of new HIV cases. The main causes of this phenomenon include:

– Stigma and discrimination: high levels of stigma and discrimination against people living with HIV discourage many from seeking medical care. People fear disclosure of their HIV status and negative consequences, which prevents timely testing and initiation of treatment. For example, this year in Kazakhstan, REActors recorded a case of a woman disclosing her status in one of the city hospitals. Nursing staff were instructed to put bracelets with personal data, including information on HIV status, on patients’ arms. After investigating the situation, the REActor filed a complaint with the chief physician of the hospital. As a result, an immediate order was issued to remove the confidential information from the bracelets, and the head of the department was reprimanded and then fired due to multiple previous violations, including disregard for patients’ rights. In North Macedonia, an attempt was made to prevent a man living with HIV from continuing to work in his position at a city hospital because of his status. Thanks to the work of national REActors, two complaints were filed: one with the director of the hospital where the man works, and one with the public Health Insurance Fund. As a result, the man was allowed to return to work and his issue has now been fully resolved.

– Limited access to health services: In some countries in the region, health services, including HIV testing and access to ART, are underdeveloped or difficult to access, especially in remote and rural areas.

– Information deficit: lack of information and education on HIV/AIDS leads to many people being unaware of treatment options and the importance of timely testing, as well as the disease itself. In Uzbekistan, a couple was found to be HIV-positive while preparing documents for a civil registry office. This fact, which had not been previously registered, was unauthorized disclosed by medical professionals, causing rumors and condemnation in the surrounding society. National REActors provided comprehensive support to future spouses, including counseling, information, psychological, and legal assistance (they were helped to protect their rights and deal with the responsibility of violators for improper disclosure of confidential information).

– Economic barriers: financial constraints and lack of resources make it difficult to ensure stable and widespread access to ART. In some countries, financial support from international donors is declining, which affects treatment availability or slows down the implementation of effective HIV programs.

These factors combine to create a complex situation in which, even with the availability of programs and the willingness of states to provide treatment, a significant proportion of the population remains unassisted. Greater intersectoral collaboration, increased awareness and reduced stigmatization, and improved access to and quality of health services are needed. An important aspect to improve the situation is to draw public attention to the problem, as on the International AIDS Candlelight Memorial. Let us remember those who are no longer with us and support those who can be helped!

United for equality: IDAHOBIT and the struggle for LGBTQIA+ rights in Eastern Europe and Central Asia

Post author By velyunsky
Post date May 17, 2024

The International Day Against Homophobia, Transphobia, and Biphobia (IDAHOBIT) is observed annually on May 17. This day serves to coordinate global efforts to raise awareness about the ongoing violations of LGBTQIA+ rights and to promote actions aimed at their protection. The date commemorates the removal of homosexuality from the International Classification of Diseases by the World Health Organization on May 17, 1990. And since 2004, IDAHOBIT has been a crucial platform for highlighting the discrimination and violence faced by LGBTQIA+ individuals globally.

This year’s theme, “No one left behind: equality, freedom, and justice for all”, calls for unity and solidarity, especially in the face of rising anti-democratic and anti-rights movements. Many LGBTQIA+ individuals continue to endure violence, stigma, and discrimination worldwide. Sixty-two UN member states criminalize consensual same-sex relations, either through laws or practices. At least 59 countries impose restrictions on freedom of expression related to sexual and gender diversity issues, with an alarming increase in such provisions over the past two years. While hate crime laws based on sexual orientation exist in 59 UN member states, only 38 protect against hate crimes based on gender identity, 9 on gender expression, and 5 on sex characteristics.

In Eastern Europe and Central Asia, LGBTQIA+ rights remain precarious. In 2023 alone, national REActors documented 1109 appeals from representatives of the LGBTQIA+ community in the region. The most common violations of the rights are discrimination, insults, harassment, threats, and, alas, often even assaults. In 2024 already in Armenia, the case was registered when the client met a man on Telegram from an LGBTIQ dating group and agreed to meet him, but the man drove off with the client’s belongings. The next day, he reported the incident to the police but faced harassment about his positive HIV status and military service, authorities’ representatives pressured him to reveal his meeting’s true nature. Only with the REActor’s support, the client was eventually released, and a preliminary investigation was initiated based on his complaint.

Many countries maintain laws that criminalize same-sex relations, and societal attitudes are often deeply conservative, leading to widespread discrimination and violence against LGBTQIA+ individuals. In some nations, LGBTQIA+ activism is met with significant resistance, and legal protections are minimal or nonexistent. Governments in this region have been slow to adopt reforms, and in some cases, have actively curtailed LGBTQIA+ rights. For instance, russia’s “gay propaganda” law, enacted in 2013, prohibits the distribution of information about LGBTQIA+ issues to minors, effectively silencing advocacy and increasing stigma. And in 2023 russia’s government unanimously supported new legislation to further restrict freedom of expression regarding sexual orientation and gender identity. It prohibits sharing positive and even neutral information about LGBTQIA+ people with hefty fines for noncompliance. In 2023, the President of Kyrgyzstan signed a law prohibiting the dissemination in the country of information that may be harmful to children. The document states that such information is defined as that which “denies family and traditional social values, promotes non-traditional sexual relations and forms disrespect for parents or other family members. A worrying situation has emerged in Georgia: the ruling party has proposed changes to the constitution that would restrict LGBTQIA+ rights. These measures could jeopardize the country’s accession to the EU. If the constitutional amendments are adopted, any LGBTQIA+ related gatherings will become illegal. The legislative initiative would also ban same-sex marriage, sex reassignment and adoption of children by same-sex couples.

Nevertheless, there have been positive strides. According to the Rating Sociological Group, in Ukraine, as of 2023, the level of tolerance in society during the war has increased: positive and neutral attitudes toward the LGBTQIA+ community have increased from 53% to 64%. A petition in support of registered partnerships for same-sex and different-sex couples in support of draft law No. 9103 “On the Institute of Registered Partnerships” as of April 26, 2023, has collected the required 25 thousand votes. Now it is up to President Zelenskyy to consider it.

Worldwide, 16 UN member states have implemented national bans on so-called «conversion therapies», and 9 have nationwide restrictions on unnecessary interventions for intersex youth. Seventeen UN member states recognize legal gender changes based on self-determination, and 35 have legalized marriage equality.

In light of these challenges, this year’s IDAHOBIT theme underscores the importance of solidarity in the fight for LGBTQIA+ rights. The push for equality, freedom, and justice is fundamental to building a democratic society where everyone is valued, respected, and is not left behind.

Empowering equality: fighting discrimination against HIV in Bosnia and Herzegovina

Post author By velyunsky
Post date May 14, 2024

In Bosnia and Herzegovina, Alen (name changed) reached out to the NGO “Partnerships in Health”, about his positive HIV status (with which he has lived for 13 years). His disclosure to his employer led to adverse treatment, including an abrupt halt in his work attendance without explanation. Initially, his department head indicated work was unnecessary, assuring him of continued salary, a situation enduring 13 years, leaving Alen increasingly isolated and eager to return to work.

Attempting to resume work and address potential social exclusion, Alen contacted his employer, only to be instructed to stay home, contrary to his hopes. After 20 years of service, the company mandated a disability pension assessment without specific reasons. Despite a medical certificate affirming his job fitness, regardless of his HIV status, Alen faces potential discrimination and ambiguity regarding the disability assessment and his workplace exclusion, raising concerns about employment law and anti-discrimination regulations.

To confront these issues, “Partnerships in Health” commits to supporting Alen comprehensively by engaging in legal representation. An attorney will offer legal counsel and serve as Alen’s representative in related legal proceedings to resolve employment issues effectively. This proactive approach underscores the organization’s dedication to safeguarding Alen’s rights and addressing complexities through legal channels. Advising Alen against the assessment presently and urging written communication with his employer the attorney aims to gather evidence for potential future legal action. “Partnerships in Health” remains steadfast in its mission to uphold the rights of individuals facing discrimination, ensuring equitable treatment in the workplace.

Strength and сourage: fighting HIV discrimination in Uzbekistan

Post author By velyunsky
Post date May 10, 2024

Solila (name changed), a 39-year-old woman, faced a serious problem at work because of her HIV-positive status. She worked in the kitchen, washing dishes in a small restaurant. One day at work, she had a conflict and a fight with one of her coworkers over spreading information about her HIV status.

After the incident, the management fired her. On REActor’s advice, the woman wrote a statement to the authorities. Initially, it was not accepted, but after the paralegal’s intervention, it was accepted.

Unfortunately, she could not be reinstated, as the owner of the establishment refused to take her back, explaining that other employees refused to work with her because of her HIV status. However the former colleague with whom the conflict occurred was fined and fired.

Despite all the difficulties, the woman found a new job and continues to live and work, overcoming discrimination and showing an example of resilience and courage.

A test of strength: fighting for truth and justice in Armenia

Post author By velyunsky
Post date May 8, 2024

In early 2024, Sergo (name changed) met a man on Telegram (a dating group for members of the LGBTIQ community) who offered to meet him. Having decided to do so, the guy went to the meeting. Afterward, leaving the car, he left his belongings there. But even when Sergo ran after the car to stop it, the stranger continued driving.

The next morning Sergo went to the police, fearing to confess to law enforcement officials that he had met the stranger through Telegram. During interrogation, they began accusing him of not serving in the army and mocking his HIV-positive status. When the conversation about a possible cab started, Sergo was forced to tell the truth that it was a meeting after meeting on Telegram. As a result, he was intimidated, threatened with criminal prosecution for untruthful statements, and was not allowed to leave the police station. Also, the police officers checked the guy’s phone and contacted his mother and other relatives.

After seeking help from the REActor, the client was advised to contact a lawyer, who sent a warning to the office of the Human Rights Defender. With the support of this office, Sergo left the police station. Further, the lawyer contacted the police department and the pressure on Sergo stopped and a preliminary investigation of the criminal case was initiated based on his statement.

Combating violence against women in Tajikistan: a path to change

Post author By velyunsky
Post date May 1, 2024

In Tajikistan, violence against women remains one of the most serious social problems. According to various international and governmental organizations, between 50% and 80% of women and children in the country face this problem. Economic violence is the most common type of violence against women, accounting for 31%, followed by psychological violence (21%), physical violence (20%) and sexual violence (6%). Total control over married women is particularly dangerous.

A 2022 Project Spotlight study found that more than three-quarters of the women surveyed agreed that violence is widespread in society. However, only 45.6% say that violence is prevalent in their communities.

According to a 2023 study by the Eurasian Women’s Network on AIDS, legislation in Tajikistan does not always protect women facing gender-based violence. While there is no prohibition on women living with HIV or using drugs from seeking help, in practice these groups cannot always access shelters when experiencing domestic violence. Nor does the law provide for adolescents to access HIV testing and treatment without parental consent.

Regarding mechanisms for documenting and responding to cases of gender-based violence, according to REAct data for 2023 in Tajikistan 175 women who sought help reported domestic or intimate partner violence, with 342 women who were abused by others. In 2023, in Tajikistan, REActors documented 566 of women’s complaints about stigma, discrimination, and domestic violence.

To improve the situation, an expert on achieving strategic changes or amendments to legislation or procedures to prevent documented violations was engaged and a case study analysis was conducted. Based on this analysis, it became evident that the most common cases documented in the program are manifestations of violence, including domestic violence, against all members of key groups. Several suggestions were made to improve the situation. In particular, to conduct advocacy activities focusing on the problem of limited access of women from vulnerable groups to shelters after incidents of domestic violence. Currently, such women face difficulties in accessing shelters, as well as problems in the area of social benefits and digital security, as well as violations of the digital rights of members of the community of key population groups. In Tajikistan, there is a particular difficulty in effectively punishing perpetrators, as many victims, feeling regret or fear of disclosing their status, are reluctant to file complaints or refuse to file complaints against perpetrators at all. Women do not want criminal penalties for partners so that a criminal record will not affect the family and children in the future. Also, it is necessary to conduct information campaigns among inspection staff on the prevention of domestic violence, for example, as part of the campaign “16 Days Against Violence”, and to hold working meetings. Involved in these activities are employees of public services who work with the prevention of violence and identified cases of violence. Conduct training on violence prevention for key population groups and on crisis counseling for psychologists and lawyers working in public organizations with key population groups. It is recommended to organize shelters and low-threshold service centers in these NGOs to reduce stigma and discrimination against key population groups, as this assistance cannot be fully provided in other organizations.

As a result, the Ministry of Health of Tajikistan also approved a developed Memo for the staff of social service centers (available in Russian) assisting victims of domestic violence, and people in difficult life situations, to prevent the denial of social services for particularly vulnerable groups. The document stipulates that the provision of social services, including services in the conditions of the day or 24-hour centers for victims of all forms of violence, including domestic violence, is justified and considered necessary, and should have the social status of accessibility for all. The existing view, whereupon admission to such centers, people listed in the category of “practicing risky behavior” cannot be recipients of this service, is improper and illegal!

Violence against women in Tajikistan remains a serious problem affecting women and children. Despite the efforts of the government and international organizations, many victims continue to face difficulties in accessing assistance and protection. However, it is important to continue to work towards ensuring that all victims of gender-based violence have access to assistance and protection, regardless of their social status or the nature of the violations, to bring about meaningful change and create a safe and secure environment.

Protect your rights: defeating discrimination in Kazakhstan

Post author By velyunsky
Post date May 1, 2024

Svetlana (name changed), a resident of the city N, participates in a substitution therapy program (OAT). Through an outsourcing company, she was assigned to work for a firm selling household chemicals as a “packer”.

Svetlana successfully passed her probationary period, demonstrating her skills and diligence. However, when it came time to apply for permanent employment, she was rejected after learning of her participation in the OAT program. The employer rescinded the hiring decision, citing possible reputational consequences.

The girl turned to REActor for help and their efforts were not in vain. Together they sent appeals to various government agencies, demanding that the situation be sorted out. They also contacted the employer, who confirmed that Svetlana had successfully passed her probationary period and that the company was now ready to hire her permanently. The employer was probably afraid of possible negative consequences and decided to change his decision. Perhaps he realized that refusal to participate in the OAT program could lead to legal problems.

Also, as a result of the written appeals, the Department of Labor and Social Security began an inspection of the outsourcing company, which was subsequently placed on the list of unreliable labor market service providers.

This story shows how a REActor was able to change Svetlana’s life and influence the policies of the company that tried to stop her.

The road to acceptance: the story of Eraj from Tajikistan

Post author By velyunsky
Post date April 30, 2024

National REActors were approached by Eraj (name changed), a 46-year-old man living with HIV. The client had a history of injecting drug use and had been incarcerated. He heard about REActors from an acquaintance with whom he attends an opioid substitution therapy (OST) program. Eraj said he learned of his HIV status in prison in 2019 and has not taken antiretroviral therapy (ART) since then due to negative information about the medication. Having recently left prison, he had already been attending drug treatment and receiving substitution therapy for two weeks. The doctor strongly recommended starting HIV treatment, but Eraj was not ready due to negative beliefs.

But the main reason for turning to REActors was stigma and discrimination from his family. Eraj was given a small room and separate utensils, and his children were forbidden to go near him. His mother constantly reminds him of his past as a prisoner and drug user, fearing that he may infect the whole family. The family does not believe his words as he has often lied to them. Eraj asked REActor to talk to his family to dispel myths about HIV and explain the importance of treatment. He said he could no longer tolerate this attitude and hoped for help.

The REActor listened to the man and gave him full information about HIV, AIDS, and ART, explaining the importance of starting treatment. She explained about her organization and services, offering to visit his home to talk to his family. The REActor asked the man to discuss with his mother first to ensure that the family was ready to talk. Three days later, the paralegal visited their home where all family members were gathered. She introduced herself and explained what HIV is, how it is transmitted, and why ART is vital. Eraj’s brother asked questions about substitution therapy, expressing his displeasure that it was also a drug, and blamed him for the problems. The REActor explained that OST is a legitimate form of treatment and that HIV can be controlled with ART. She asked the family to support Eraj through the process, warning that without help he could relapse. The family eventually decided to give Eraj another chance on the condition that he start treatment and work on himself.

A week after the visit, the REActor called Eraj to see how he was doing. He reported that he had started taking ART, was visiting the OST site, came home on time, and his brother had arranged for him to work as a construction assistant. He was happy that life was getting better and thanked me for the help.

A story of harassment and humiliation in Armenia

Post author By velyunsky
Post date April 29, 2024

Earlier this year, sex worker Agasi (name changed) was walking at night in a park in his city and texting on the phone with a client they were supposed to meet there at 1 a.m. Two civilians approached him, identifying themselves as police officers. They showed him their identification cards, but Agasi insisted that they open the documents so that he could verify their authenticity. After checking, the police officers asked him if he had any prohibited items and what he was doing in the park at night.

Agasi replied that he did not have anything prohibited and explained that he was just walking as the park was close to his house. The police officers ordered him to show his pockets and bag. Agasi was very scared as he was under the influence of psychoactive substances, but fortunately, he did not have anything prohibited with him. After making sure he had nothing on him, the police ordered him to show his phone and open the last app he had used.

Agasi asked why they needed to do this, and the officers said that there were a lot of “drug addicts” in the park and that they had a suspicion that Agasi was one of them because he was wearing a hoodie and carrying a barrette bag at night in the park. Agasi showed the Telegram app where he had recently corresponded with his client. The police officers read all the messages. Agasi was embarrassed but could not do anything at that moment. The police then ordered Agasi to leave the park mockingly and told him that it was better to walk outside the city, as “people like him” gathered there.

This case vividly illustrates the forms of discrimination faced by sex workers and members of the LGBTIQ+ community. Harassment, humiliation, and unfounded suspicion by law enforcement agencies are just some of the challenges they face daily, which further emphasizes the need to protect the rights and dignity of all citizens, regardless of their occupation.

Breaking barriers: combatting sexual orientation prejudice in Azerbaijan

Post author By velyunsky
Post date April 21, 2024

Murad (name changed), a 20-year-old science student at a university, has faced immense challenges in his young life. At the age of 15, he discovered his sexual orientation when he fell in love with a friend. This realization brought him face-to-face with the harsh realities of prejudice and discrimination. As the only child of elderly parents, Murad took great pains to shield them from potential rumors and the societal backlash that could devastate them.

Despite his efforts to maintain a low profile, Murad’s secret was threatened when a classmate discovered his truth. The classmate menacingly suggested revealing Murad’s sexual orientation to his family, a prospect that filled Murad with dread. For Murad, the thought of his parents suffering because of his identity was unbearable.

In his distress, Murad reached out to REActor. Understanding the gravity of the situation, REActor referred Murad to a lawyer for immediate assistance. The lawyer arranged to meet Murad at the NGO Struggle Against AIDS (SAAPU) office to discuss the best course of action.

Following the lawyer’s advice, Murad invited the threatening classmate to a meeting. Though initially hesitant, the classmate agreed to attend. During the meeting, the lawyer calmly and firmly outlined the legal repercussions of mental abuse and blackmail. Confronted with the serious consequences of his actions, the classmate had a change of heart. He apologized to Murad and assured him that he would respect his privacy going forward.

Murad’s story highlights the fundamental importance of privacy as a human right. Privacy underpins freedom of association, thought, and expression, as well as freedom from discrimination. While different countries and individuals hold varying views on privacy, the rights of all human beings must be safeguarded, regardless of the obstacles they face. And thanks to the ongoing support and advocacy of organizations such as SAAPU and the work of REActors, the situation in the country is changing.

The story of a pregnant girl fighting for her health in Ukraine

Post author By velyunsky
Post date April 19, 2024

Hanna (name changed) went to a gynecologist at her place of residence because of pain in her lower abdomen. After an examination, she was diagnosed with a threatened miscarriage in the short term. After all the necessary tests, it turned out that the girl was HIV positive. She was not informed about this in an incorrect form, and instead of support and measures to preserve her pregnancy, she was strongly advised to terminate the pregnancy. The doctor argued that the child would be born sick, with a positive HIV status and possibly with other developmental disabilities.

Hanna was shocked by the doctor’s reaction and left without registering for pregnancy. At home, she started bleeding from stress and was quickly taken to the hospital. There, after learning about her positive status, she was still provided with help, although they hinted that she was a “special” patient and it would be nice to “pay”.

By chance, the girl found the organization and asked for help. The REActor introduced her to a social worker who began to take care of her, and they discussed an action plan to meet her needs. The REActor very correctly and professionally advised the girl on all issues related to her positive status, and accompanied her to the infectious disease specialist of the city AIDS center, where she was registered and prescribed ART therapy without any problems.

In addition, Hanna was offered a consultation with the organization’s psychologist to stabilize her psychological state and legal advice. The client continues to receive psychological counseling to stabilize her condition. She did not want to write a complaint in order not to return to a state of stress. The girl often visits the organization, receives therapy, and tries to improve her personal life.

“I have my right to work”: the resilience of a person living with HIV working in a hospital in North Macedonia

Post author By velyunsky
Post date April 18, 2024

A person living with HIV who takes antiretroviral medications can work. In North Macedonia the Law on Labor Relations and the Law on the Prevention and Protection from Discrimination both prohibit discrimination based on health status, which includes HIV. However, in this case, an attempt was made to prohibit a person living with HIV from continuing to work at his place of employment, a city hospital in one Macedonian town.

“Don’t come to work.”

In August 2023, the person underwent an HIV test at the hospital where he works as auxiliary medical staff. When the test came back positive, the information was shared with all of his colleagues. That same day, he received a call from a doctor informing him that he should not report to work the following day. At the same time, the individual had other health issues, so he sought medical assistance at the same hospital where he had worked for almost 35 years. The same doctor who informed the individual that he should not report to work declined to examine him. The individual left to seek medical assistance in another place. In the meantime, the person started taking antiretroviral medicines.

After the visit to the hospital, the person took medical leave due to additional health conditions that necessitated bed rest. After his health issues were resolved, he wanted to return to work. However, his family doctor and the medical commission, which is in charge of awarding medical leave, continued to extend his medical leave without his consent and any specific reason, citing the fact that he is a person living with HIV. Soon after, he was directed to a doctor, who specialized in labor medicine, to evaluate his ability to work. According to the relevant legislation, if a person living with HIV is on medical leave for 10 months or less, he or she must have an assessment to determine his or her ability to work.

REAction and outcome

A REActor met with the individual and suggested he obtain a report from his doctor at the Clinic for Infectious Diseases and Febrile Conditions, stating that he is well and has no reason not to work. After receiving the report, the Association Stronger Together from Skopje filed two complaints: one with the director of the hospital where the individual works and one with the state Health Insurance Fund. The letter to the director described the violations committed by the staff, such as the denial of healthcare, the disclosure of medical data, and insults directed at the employee, and demanded that the hospital should initiate an investigation and punish the perpetrators, while also undertaking measures to stop the harassment of the employee. The Hospital was also notified that Stronger Together and other civil society organizations would be ready to provide legal support to the person with HIV should he decide to take the matter to court. The letter to the Health Insurance Fund indicated that the family doctor and the medical commission are providing medical leave to those who don’t need it and by default, spending the Fund’s money without justification; additionally, the letter enunciated that the extension of the medical leave was without the patient’s consent. Following the complaints, there was a reaction by the Hospital, which allowed the person to return to work and he has not reported any other breaches of his rights afterward.

Bridging borders: battling stigma in Bosnia and Herzegovina

Post author By velyunsky
Post date April 14, 2024

In Bosnia and Herzegovina, a married couple faces a complex legal battle with profound implications. Bekir (name changed) and Aurore (name changed), originally from Bosnia and Rwanda respectively, have encountered unexpected challenges in their quest to build a life together in Bosnia and Herzegovina. This story unfolds against the backdrop of immigration laws, health problems, and the pursuit of justice.

Their journey began with a serendipitous meeting in Rwanda, where Bekir was engaged in a construction project. Following their marriage in Rwanda, the couple encountered bureaucratic hurdles as they sought to establish a life together in Bosnia. Despite obtaining visas, Aurore’s HIV-positive status became a stumbling block in her application for permanent residency, with authorities citing concerns about public health.

Undeterred, the couple sought legal assistance to navigate the asylum process, recognizing it as a lifeline for their future together. With the support of a knowledgeable immigration lawyer, they are now advocating for refugee status based on principles of family reunification and the best interests of their child. Their case underscores the humanitarian imperative of preserving family unity and upholding international human rights standards, as enshrined in the Convention on the Rights of the Child. By leveraging international human rights principles, they aim to secure refugee status and a pathway to a secure future in Bosnia and Herzegovina.

Moreover, Aurore’s HIV status not only adds a layer of complexity to their case but also highlights pervasive discrimination and stigma. Beyond legal battles, the couple is fighting for access to adequate healthcare, submitting requests to relevant authorities to ensure Aurore’s right to tertiary medical care following international standards. They submitted multiple requests to the relevant ministries, aiming to secure her right to tertiary medical care, which is crucial for her health and the well-being of their family.

The perseverance of Bekir and Aurore, along with the strategic legal advocacy provided by their lawyer, ultimately paid off. Aurore was granted refugee status, marking a significant victory in their journey. This allowed her to receive a refugee card, health insurance, and a personal identification number (JMBG), ensuring her access to essential services. With the legal hurdles behind them, the couple can now focus on building their life in Bosnia and Herzegovina.

This case not only represents a personal victory for Bekir and Aurore, but also showcases the transformative power of legal advocacy and the importance of partnerships between NGOs like Partnerships in Health and skilled legal professionals. Their combined efforts helped secure justice, challenge discrimination, and uphold human rights, demonstrating how resilience and expert support can overcome even the most daunting obstacles.

Violation of confidentiality of a patient at an AIDS center in Kazakhstan

Post author By velyunsky
Post date April 10, 2024

Marat (name changed) faced a serious violation of his privacy and data protection rights. Due to his employment, he did not visit the AIDS Center where he was registered. A nurse from the facility visited him at his place of residence, but did not find the man at home. As a result, she left a note in the door, urging him to come in for a scheduled test. Neighbors who read the note misinterpreted the information about Marat’s HIV status and began to stigmatize him as “contagious”.

Leaving the note with information about Marat’s HIV status in a visible place led to a violation of his right to privacy and protection of personal data. It also resulted in serious social consequences, including stigmatization by his neighbors. According to the law, information about HIV status is strictly confidential and cannot be disclosed without the patient’s consent, and violation of these norms entails liability and may lead to legal consequences for the medical institution and its staff.

To protect his rights, Marat turned to REActors for help. In response to the nurse’s unlawful actions, REActors prepared and wrote a complaint to the AIDS Center.

Finding support: Vardan’s story from Armenia

Post author By velyunsky
Post date April 8, 2024

In early January, one of the national REActors in Armenia received an unexpected call from Vardan (name changed), one of his former mentees. The guy reported that he was kicked out of his house after his relatives found out about his positive HIV status (a neighbor saw him receiving ART in the hospital and told his family everything). This left Vardan homeless and unsupported.

The REActor responded immediately by inviting Vardan to his home. He decided to help the client not only by providing temporary shelter but also by supporting him in his difficult situation – the problem was not solved just by Vardan staying with him temporarily. There needed to be a change in his family’s attitude.

In the morning, the REActor contacted the boy’s mother and frankly told her about her son’s HIV status. Initially, she reacted negatively, but after a serious conversation and thinking about the situation, the woman changed her opinion. The mother was ready to take her son back and support him.

The REActor accompanied Vardan to his family, where they discussed the difficult situation together and overcame their differences. As a result, the boy was accepted back and everyone expressed their willingness to support him in his fight against HIV.

After that, the REActor contacted the National Center for Infectious Diseases and reported what had happened. They promised to take steps to help patients like Vardan avoid similar unpleasant situations in the future by providing them with protection and support.

This story demonstrates the importance of support and understanding in the fight against HIV, and the power of community intervention to address difficult life situations.

Entitlement or preference? The world celebrates Health Day

Post author By velyunsky
Post date April 7, 2024

April 7 marks World Health Day, founded by the World Health Organization (WHO) in 1950. This day recalls the importance of health for all people in the world and emphasizes the need for access to skilled health care as a fundamental human right. In this context, providing life-saving services such as opioid substitution therapy (OST) to people from key populations is critical. This approach enables patients to manage physical dependence, reduce the risk of transmission of infectious diseases (e.g. HIV or hepatitis), and improve quality of life.

However, despite the proven effectiveness of OST, many people around the world (including in the Eastern Europe and Central Asia region) face barriers to accessing this treatment due to stigmatization, lack of access to health services, or legal restrictions. This creates serious obstacles for those in need of assistance.

For example, recent changes to the Ministry of Health’s January 24 Order to the opioid substitution therapy program in Georgia have made significant adjustments. Under the previous rules, patients participating in the program had the opportunity to receive a two-day dose of medication if they were unable to visit a healthcare facility, and this dose could be picked up for them by a family member or other authorized person. However, under the changes made, this right has been limited and patients or their authorized representatives must now visit the service center daily.

The changes also affected the ability to provide patients with pharmaceuticals in special cases. Previously, there was an option to receive a five-day supply of medication when long-term home treatment exceeding two months was required, or a seven-day supply for those with a pronounced disability or active tuberculosis. However, the amendments have completely abolished this exceptional regulation. Under the previous regulation, patients could also be given a dose if they had to move around the country (the principle of business travel). The innovations have abolished this regulation and now, even in cases of exceptional need such as business travel or ill health, patients can only be given a one-day dose.

Kazakhstan also has a serious problem with violations of the rights to health care and health maintenance for people who use psychoactive substances. These problems have been identified, including through the REAct, on appeals related to obstacles in accessing medical services for clients. This situation covers several aspects:

– Lack of access to free medical care, including tests and abortions, for persons without compulsory social health insurance.

– Limited access to a guaranteed amount of free medical care for people who use psychoactive substances.

– Insufficient drug supply and diagnosis of diseases among persons in detention centers.

According to the Order of the Minister of Health of the Republic of Kazakhstan from September 23, 2020, № KR DSM-108/2020, treatment of people who use psychoactive substances is carried out within the guaranteed volume of free medical care in regional Mental Health Centers (MHC). Anonymous treatment is available only on a paid basis. However free medical care does not provide the necessary range of services for social, psychological, pedagogical, labor, cultural, economic, and legal support for people from the community.

The theme of this year’s World Health Day is “My Health, My Right” and aims to support and recognize the right of everyone, wherever they are, to access high-quality health care, education and health information, and freedom from discrimination. This means that it is worth taking another opportunity to draw public attention to such violations of people’s rights to quality and timely health care and the need to develop a model that complies with human rights principles and international standards while taking into account the needs of patients, their families and the interests of organizations providing addiction treatment services. And legislate to guarantee the provision of a full range of assistance for the treatment and rehabilitation of everyone who needs it.

Health is everyone’s right, as is equal access for all people to qualified care.

Confidentiality of people living with HIV in Uzbekistan: care for loved ones and protection of rights

Post author By velyunsky
Post date April 1, 2024

The client is a person living with HIV and has been registered at an AIDS center since 2020. He lives in X district of A city together with his spouse and two minor children. The family receives a disability pension and is on the low-income list. One day, on their return from the bazaar, the husband and wife learned from a neighbor that the secretary of the Mahali committee had invited them to a meeting. The woman was not told the reason for the conversation, but the couple’s HIV status was revealed to her. This breach of confidentiality angered them and the couple slowly asked that information about their disease not be disseminated, as it could hurt their children and was against the law.

Thereafter, the REActor entered into a dialog with the Mahali committee secretary. He emphasized that disclosure of information about the status of HIV-positive people violates their rights to confidentiality. The family was advised to contact a lawyer or human rights organization to advocate for their interests.

This story underscores the importance of protecting the confidentiality of HIV status for the well-being of the family. No one should suffer from disclosure of their medical status, and everyone has the right to have their personal information protected.

Original Source (in Russian)

Also read:

Public appeal to the Ministry of Health of Georgia: assessment of changes in legislation on substitution therapy program

Discussions on strategies to combat HIV/AIDS and tuberculosis brought together key national experts in Georgia

News

Showing strength: International Transgender Day of Visibility

Post author By velyunsky
Post date March 31, 2024

March 31 is International Transgender Day of Visibility, which is dedicated to supporting, recognizing, and raising awareness of the rights of transgender people around the world. It is a time to raise important issues related to the transgender community and stimulate public dialog about the importance of respect and equality.

In the Eastern Europe and Central Asia (EECA) region, the visibility and rights situation for transgender people remains complex and multifaceted. Laws and policies in individual countries restrict community rights, including access to health care, gender reassignment, and protection from discrimination. In 2023 alone, national REActors documented 1,109 complaints from members of the LGBTIQ community in the region. The most common violations of the rights of transgender people are discrimination, insults, harassment, threats, and, alas, often it even comes to attacks. An example happened in Armenia with a transgender girl, an activist, and an employee of a local NGO. While testing and counseling a client for HIV, she was attacked by a stranger. With the participation of REActors, it was possible to record the facts of the crime and ensure the initiation of a criminal case. Another egregious case occurred in Tajikistan – a transgender woman was detained without reason by law enforcement officials and her personal belongings were confiscated. Interrogations began. This put the victim in an extremely difficult situation. REActors were able to provide legal defense by finding a lawyer willing to take on the case and defend her rights. They were also able to raise the necessary funds for the client to leave the country safely. Thanks to their support, after two months, the case was closed and the belongings were returned.

The fight to protect the rights of transgender people in the EECA region remains relevant and important. A lot of work is still needed, but the situation is gradually changing for the better, mainly due to the active role of transgender people themselves in this process. They invest a great deal of interest in creating changes that directly affect their lives and well-being (because for the majority of authorities, who are usually people who are not uncomfortable with gender conformity, alas, these issues may seem less important or irrelevant). Local non-governmental organizations and community groups are also actively working for the benefit of transgender people in the EECA region, providing them with support, information, and protection from discrimination and violence. These efforts play an important role in raising awareness and creating a safe and supportive environment for transgender people. It is important to continue to mobilize public opinion, give support to the transgender community, and work to create laws and policies that protect their rights and dignity.

On International Transgender Day of Visibility, each of us can do something important to show our support. Here are a few ways you can do that:

1. Education and awareness: learn more about transgender issues, history, and the fight for transgender people’s rights. The more we know, the better we can support their fight for equal rights and opportunities.

2. active listening and support: listen to the stories and experiences of transgender people without judgment. Support them by expressing your support and solidarity. Have an open dialog and be willing to listen to their needs and experiences.

3. Participate in events: take part in events to commemorate International Transgender Day of Visibility. These can be rallies, public lectures, marches, or other events to raise awareness and support for the transgender community.

4. Utilize social media: share transgender people’s stories, relevant articles, and resources to spread the word about March 31 and the importance of supporting this community.

5. Financial support: support organizations and charities working to benefit the transgender community. You can make donations or participate in fundraisers to help fund support and advocacy programs.

6. Fight for rights: engage in active resistance to discrimination and violence against transgender people. Support legislative initiatives and policies to protect their rights and ensure equality before the law.

7. Respect Identity: respect and recognize everyone’s gender identity. Use correct pronouns and respect their choice of name and expression of their gender.

Showing support and solidarity with transgender people is an important step towards creating a society where everyone can feel respected and protected, regardless of gender identity.