Categories
Response stories

Defeating bureaucracy in Uzbekistan: a story in access to ART

There are times in everyone’s life when you face unforeseen circumstances and difficulties that require perseverance and decisive action. The story of Barfina (name changed), who found herself in a situation where she was denied access to the life-saving drug ART (antiretroviral therapy), was an exceptional example of fighting for her right to health.

The client had to travel to Region N for several months to care for her mother. She took care to register at her new place of residence but unfortunately did not have time to receive ART before she left. Upon returning to her place of registration, she went to a specialized center to receive the drug, hoping for a quick solution to her problem. However, Barfina faced rejection, arguing that the drug was not available under the new registration. It would seem that trouble awaited her.

However, the client did not give up. She was advised to consult a lawyer, and this turned out to be a key step in her struggle. With the help of professional legal support, she began to act according to all the rules of the law. The lawyer contacted the local Civil Registry Center (CRC) and the doctor responsible for prescribing ART. Despite legal arguments, the regional doctor refused to provide the drug, violating the patient’s rights.

Barfina’s life depended on this medicine and she decided to go all the way. Together with a lawyer, they went to the deputy chief physician of the local hospital. There, a complaint was written about the behavior of the infectious disease specialist who refused to prescribe the medicine. Under the pressure of public attention and justified complaints, the deputy chief physician finally gave in and prescribed ART to the client for two months. But it is worth noting that the infectious disease doctor has still not admitted his guilt and refused to apologize for his actions.

This client’s story is an example of how perseverance and knowledge of one’s rights can defeat even the most complex bureaucratic system. For many people, ART is a life-saving medicine and no barriers should prevent them from receiving it. This case emphasizes the importance of fighting for one’s rights and gives hope that even in the most difficult situations, justice can be achieved.

Original Source (in Russian)


Also read:

Combating Discrimination Against Children with HIV in Kazakhstan Educational Institutions

Problems of HIV-positive prisoners in Azerbaijan

Categories
Response stories

Combating Discrimination Against Children with HIV in Kazakhstan Educational Institutions

In our society, there is an obligation to ensure equal rights and opportunities for all citizens, regardless of their health or other characteristics. However, even in the modern world, some individuals face discrimination, especially children with HIV-positive status. The story of Ayman (name changed) and her child is just one example of such discrimination, but it is important to highlight the actions taken to protect their rights.

Situation:

Ayman, a single mother, found herself in the need to provide care and education for her child, who also happens to be HIV-positive. She decided to enroll her child in an educational center that offered extended-day services and was conveniently located near their home. The center’s conditions included providing supervision for the child before and after school, meals, assistance with homework, and a focus on educational aspects.

However, when Ayman applied to the educational center, she was denied a contract for educational services due to her child’s HIV-positive status. This refusal left her puzzled and worried, as she did not know where to turn to ensure a safe and caring environment for her child after school.

Actions and REAction:

Ayman and an infectious disease specialist, who provided medical support to her and her family, decided to take action together. They contacted the management of the educational center and invited the staff for an explanatory conversation. During this discussion, several crucial points were addressed:

Modes of HIV Transmission: The infectious disease specialist provided information on how HIV is transmitted and the precautions taken to prevent transmission within educational institutions.

Non-Discriminatory Approach: It was explained that the Republic of Kazakhstan guarantees protection from discrimination based on health or health status. This means that refusing services based on HIV-positive status is unacceptable.

Confidentiality: To protect the child’s confidentiality and medical information, the center’s management was reminded of the strict need to maintain confidentiality and not disclose the child’s diagnosis.

Conclusion:

The joint efforts of Ayman, the infectious disease specialist, and the management of the educational center resulted in the resolution of the situation and the protection of the child’s right to receive educational services. This case underscores the importance of education and public awareness about the rights of HIV-positive citizens and the impermissibility of discrimination based on their health. The pursuit of equality and the protection of every child’s right should be a priority in educational institutions and society as a whole.


Also read:

Combating Discrimination Against Children with HIV in Kazakhstan Educational Institutions

Problems of HIV-positive prisoners in Azerbaijan

Categories
Response stories

Triumphing over the difficulties of recovery: REActor’s assistance in the rehabilitation of an HIV patient in Kazakhstan

Dilara (name changed), living with HIV, faced a serious need for surgery to repair her stomach. However, her long road to recovery was hampered by several bumps in the medical process.

First, the checkup required before surgery was postponed four times. The culprits were constant doctor absences, technical problems with equipment, and unstable database performance. These delays added stress to Dilara’s already difficult situation.

However, the hardest part was the attitude of the hospital staff. Because of her HIV status, Dilara faced constant neglect and underestimation, further worsening her emotional state.

The story took an unexpected turn when Dilara sought help from a REActor. As a result of the counseling session, she was given a detailed explanation of her rights and the timeline for her recovery surgery.

Together with the REActor, they filed a complaint with the Community Service Center (CSC) about the attitude of the staff and the postponement of the process. The case was registered and appropriate action was taken.

With the removal of the difficulties and pressures from the REActor and the CSC, Dilara was able to be examined and successfully underwent gastric reconstruction surgery. She is now in the rehabilitation phase, regaining her health.

This story emphasizes the importance of systemic support and proactive intervention in complex medical situations, especially when a patient faces additional challenges due to their status.


Also read:

Combating Discrimination Against Children with HIV in Kazakhstan Educational Institutions

Problems of HIV-positive prisoners in Azerbaijan

Categories
Response stories

Caring for people living with HIV in Azerbaijan: how REActors help to overcome difficulties with residence registration

Recently, REActors in Azerbaijan have been facing a growing problem of integrating people living with HIV (PLHIV) into society. In more than 100 registered cases, problems have arisen either with personal documents or with official registration. Some of them had just been released from prison, some found themselves because their families had left them alone, and some had lost their documents. And the lack of documents limits access to social security services and benefits. 

However, despite the difficulties faced by members of vulnerable groups, national paralegals act as mediators to help resolve such problems. One example of such support was the case of Zaur (name changed), a member of the PLHIV community, who faced serious difficulties due to the lack of a propiska. In Azerbaijan, as in many other countries, this is an important prerequisite for obtaining government services such as a new passport, bank card, or pension payments.

Zaur was discharged by the police without obtaining a new propiska. This created an obstacle for him in receiving social services, as most state organizations require a place of residence registration before providing services. This situation became a real challenge for Zaur, depriving him of the opportunity to register elsewhere and receive the necessary social benefits.

This is when REActors stepped in, acting as intermediaries between Zaur and social services. They started by collecting the necessary documents that provided full information about his condition and needs. This included medical documents confirming HIV status and other documents necessary to resolve the issue of residence registration.

Next, the REActors actively searched for a suitable place for residence registration, taking into account all requirements and restrictions. However, their assistance was not limited to the selection. They also covered all costs related to registration and other necessary procedures. The resources for this were allocated from the paralegals’ funds, which emphasizes their dedication and willingness to help those in need. At the moment, the issue of Zaur’s place of residence is being resolved. 

This case became not only a vivid example of effective assistance to PLHIV in Azerbaijan but also emphasized the importance of the role of national REActors in ensuring social justice and inclusion. With their participation and support, a society is being created where every person can expect to be able to live a full life, regardless of their circumstances.


Also read:

Combating Discrimination Against Children with HIV in Kazakhstan Educational Institutions

Progress in Addressing Discrimination and Promoting HIV Awareness in North Macedonia

Categories
Response stories

Fighting for a safe birth: the story of a client from Uzbekistan

This case will tell the story of Nisa (name changed), 38 weeks pregnant, who faced denial of medical care at the maternity hospital. Thanks to the intervention of REActors, she was able to ensure the safe delivery of her baby despite the difficulties and obstacles along the way.

There is a special phase in every pregnant woman’s life when she awaits her baby with joy and hope. However, sometimes the happiest moments can be overshadowed by unexpected difficulties. This is exactly what happened to a client who was in her 38th week of pregnancy.

When Nisa felt unwell and experienced pain, she immediately went to the maternity hospital where she was referred because of the dislocation. However, she faced an unexpected rejection. The reason was that the maternity hospital she was referred to was closing for washing after four days. The doctors were only willing to perform a natural birth, which could be completed within two days, but they could not perform a cesarean section. In addition, the client’s elevated viral load made independent labor impossible. When she tried to go to another birthing center, she was also turned down, explaining that her original birthing center was still open.

However, the client did not give up. With perseverance and determination, despite the challenges, she decided to follow through to ensure the safe delivery of her baby. Nisa visited the maternity hospital and engaged in a dialog with the head doctor and the doctor in charge of the cesarean section. She demanded a written waiver from the maternity hospital to document her rights to medical care. Despite resistance, she got her way and was admitted to the maternity hospital.

After all the necessary tests and examinations, Nisa was referred for a cesarean section at another maternity hospital, to ensure safety for both her and the baby.

This story is an example of how perseverance and self-belief can overcome the most difficult situations. Thanks to the intervention of REActors and the client’s determination, she was able to ensure the safe delivery of her baby despite the bureaucracy and denials she faced. This is an important reminder that fighting for your rights and taking care of your health is always worth the effort.

Original Source (in Russian)


Also read:

The Scarlet Letter: The Marking of a Person Living with HIV in North Macedonia

Discrimination against HIV-positive prisoners in Kazakhstan: Barriers to resocialization

Categories
Response stories

Problems of HIV-positive prisoners in Azerbaijan

The issues faced by people living with HIV are not overlooked in Azerbaijan. The story of Samir (name changed) is just one of many cases, and former prisoners who have spent time in prison for breaking the law are well aware of the problem. Before being imprisoned, Samir injected drugs and got HIV as a result of improper syringe use. Despite his imprisonment, he did not stop his dangerous practice after his release. 

It was known that the Republican Narcology Center (RNC) could provide an opportunity to participate in an opioid substitution therapy (OST) program. However, Samir faced a refusal when he applied to the Center, motivated by the need to undergo mandatory treatment before joining the program.

In June 2023, Samir sought help from the REActor and asked for assistance in enrolling in the OST program. He explained that he was already taking antiretroviral treatment and enrolling in the program would help him to break the cycle.

Actions taken

Given that the organization is a member of the Country Coordinating Mechanism, which also includes the RNC, the project coordinator contacted the head of the Center. As a result of the discussion, it was agreed that Samir could be included in the OST program without mandatory pre-treatment. For convenience, Samir’s inclusion in the program was done at a point located at the Republican AIDS Center.

Conclusion

The current situation with HIV-positive prisoners in Azerbaijan has its own nuances. In recent years, the country has taken steps to improve access to health services, legal aid and social protection for key populations, including those released from detention. However, significant work remains to be done to achieve positive change.


Also read:

The Scarlet Letter: The Marking of a Person Living with HIV in North Macedonia

Discrimination against HIV-positive prisoners in Kazakhstan: Barriers to resocialization

Categories
Response stories

The Scarlet Letter: The Marking of a Person Living with HIV in North Macedonia

Several laws in the Republic of North Macedonia govern the right to privacy of patient’s medical records and information, which are given special consideration in data protection laws. However, in some cases, patients’ HIV status is disclosed, which can have a significant impact on their social lives and violate their right to privacy and family life.

Scarlet Letter: “HIV+”

In November 2022, the patient, a person living with HIV, visited the Clinic for Plastic and Reconstructive Surgery, where he was scheduled to undergo surgical intervention for the third time in six years. During the consultations, the patient informed the anesthesiologist and the surgeon that he had been diagnosed with HIV a year ago, that he was taking antiretroviral medications, and that his virus level was undetectable. Such information did not prevent the surgeon from performing the surgery, and he was scheduled for surgery the following month. There were 15 people in the operating room on the day of the surgery, and the anesthesiologist told the patient that he was supposed to notify them about his HIV status, which he had previously done.

During his stay at the Clinic, the patient was subjected to stigmatizing and unprofessional behavior from medical professionals, particularly medical nurses. “HIV+” was written in bold and red letters on his patient documents, including his medical history and temperature list. This was not standard practice, and as a result, all of the other six patients in the same room learned about his HIV – status. Additionally, the nurses warned the young doctors to be “extra careful” with the patient and to “not touch” him. 

REAction and outcome

The patient agreed for the Association «Stronger Together» to send a letter to the Clinic’s director outlining the facts of the situation and the legal provisions that had been broken. Following the delivery of the letter, representatives of the Association met with the Director and several Clinic employees, who stated that they required more information about the patient because they did not recall a patient living with HIV being admitted to the Clinic. Following the sharing of such information, another meeting was held at which the employees acknowledged the accuracy of the patient’s claims and apologized to the Association and the patient. The head nurse told the representatives of an internal meeting, where she informed the personnel of their responsibilities as physicians. The Association and the Clinic agreed to work together to educate young doctors about HIV and the social implications of an HIV diagnosis on patients, by signing a Memorandum of Understanding. The first workshop resulting from the Memorandum was held in early June of this year.


Also read:

Shielding the Innocent: Human Trafficking in Bosnia and Herzegovina

Discrimination against HIV-positive prisoners in Kazakhstan: Barriers to resocialization

Categories
Response stories

Discrimination against HIV-positive prisoners in Kazakhstan: Barriers to resocialization

The situation of HIV-positive prisoners in Kazakhstan faces challenges and discrimination, especially in the process of reintegration back into society. The denial of resocialization services to HIV-positive prisoner Damir (name changed) was a clear example of the limitations faced by HIV-positive people upon release from correctional facilities.

Damir’s situation

In April 2023, Damir contacted REActor in connection with applying for parole from a correctional facility. He planned to move to a re-socialization center after his release for support and integration back into society. However, during the court hearing, the specialist at the Resocialization Center stated that Damir was HIV-positive and had to stay in a specialized medical facility, which prevented the provision of accommodation services in the Resocialization Center.

Discriminatory barriers

The refusal of the Resocialization Center to provide services to HIV-positive Damir is based on unacceptable discrimination, which may violate his rights to equal access to social support and the possibility to return to society after serving his sentence. The refusal is based on paragraph 2, paragraph 30 of the Rules of activity of organizations providing special social services, approved by the Order of the Minister of Labor and Social Protection of Population of the Republic of Kazakhstan from August 29, 2018, №379.

Measures taken

In turn, Damir appealed to the Representative of the Ombudsman for Human Rights in the Republic of Kazakhstan for the East Kazakhstan region and filed a complaint against the Resocialization Center. The representative of the Ombudsman initiated a working meeting with the participation of the Prosecutor’s Office, the Resocialization Center, the Health Department, the AIDS Center, and the Department of Corrections and Detention. During the meeting, it was decided through the prosecutor’s office to request the Ministry of Labor and Social Protection of Population of the Republic of Kazakhstan to explain the meaning and content of p. 2 p. 30 of the Rules of Activity of Organizations Providing Special Social Services.

Conclusion

The situation with HIV-positive prisoners in Kazakhstan requires close attention and additional measures to prevent discrimination and ensure equal access to social and medical support. It is necessary to strive for fair treatment and avoid violation of the rights of HIV-positive people, including their right to re-socialization and return to society after serving their sentence.


Also read:

Discrimination against HIV-positive women in Kazakhstan: Life on the brink

Client Incident: Wrongful Disclosure of Medical Information in Uzbekistan

Categories
Response stories

Discrimination against HIV-positive women in Kazakhstan: Life on the brink

The situation of HIV-positive people in Kazakhstan faces various challenges, including discrimination and stigmatization. Despite improved awareness and access to medical care, many women continue to face limitations and challenges related to their HIV status. Consider the case of Amina (name changed), who faced discrimination and difficulties in accessing medical care for her pregnancy termination.

On March 15, Amina, who is HIV-positive, approached REActor with a question about where she should initially go to terminate her pregnancy, as she has a one-year-old HIV-positive child and is not yet ready to become a mother again. At first, the REActor referred Amina to an infectious disease doctor, which is standard practice for women with HIV, but this is where the first difficulties began. The doctor issued a certificate required for termination of pregnancy and referred her to a gynecologist at her place of residence. However, when Amina went to the polyclinic with her paid ultrasound, it turned out that the pregnancy term determined on its basis did not coincide with the results of the previous study. This led to additional tests and a delay in the procedure.

On March 27, after a repeat ultrasound and hCG analysis, she was finally given a referral to the perinatal center for termination of pregnancy. However, the maternity center denied her the operation, explaining that they could not accept an HIV-positive patient because their facility did not have a “dirty zone” for such cases. This case of discrimination was based on recent rules introduced at the perinatal center.

Fighting for rights

Rejected and humiliated, Amina went to the REActor for help. The REActor went with her to the head of the AIDS Center and found out that the rules imposed did exist. Then REActor found out that the gynecologist who treated Amina at the polyclinic knew about the new rules and should not have referred her to the perinatal center. However, the gynecologist forgot about this and gave the wrong referral, putting Amina in an even greater situation of uncertainty and anxiety.

Amina was then sent to the city hospital, but even there she was not admitted because of the wrong referral. Only after correcting the document was, she admitted to the hospital and the surgery was finally performed on April 3.

Measures against discrimination

After all, this happened, Amina decided to file a complaint against the responsible gynecologist for the wrong referral. Together with the REActor, she went to the relevant service, where her complaint was recorded. The Ministry of Health of Kazakhstan reacted quickly and took action against the doctor.

According to the Ministry’s report, the doctor was severely reprimanded, deprived of her bonus, and suspended for 6 months for advanced training. However, the doctor herself did not provide Amina with such negative experiences and discrimination.

Conclusion

Amina’s case reflects the difficulties faced by HIV-positive women in Kazakhstan, particularly in accessing health care and reproductive services. Discrimination based on HIV status remains a serious problem, and additional measures must continue to be worked on to ensure equitable access to health care.

Authorities and healthcare providers should actively work to increase awareness and education on HIV/AIDS and implement protective mechanisms to prevent discrimination based on HIV status. Such measures will help to create a more favorable and safer environment for all people, and allow everyone to receive quality health care without fear of discrimination.


Also read:

Client Incident: Wrongful Disclosure of Medical Information in Uzbekistan

Survival Story: How an organization helped a woman overcome her HIV diagnosis and start a new life

Categories
Response stories

Client Incident: Wrongful Disclosure of Medical Information in Uzbekistan

Confidentiality of medical information is a fundamental principle in health care. Physicians and medical staff have to protect patient confidentiality and prevent the disclosure of personal information. In this article, we will examine one case involving a client who experienced the wrongful disclosure of his medical status to his neighbors.


Case Description:


In this incident, the client lives with his wife in an apartment that is located in the same building as his parents. While they were away on vacation that same day in the evening, a neighbor who lives on the ground floor came and informed the client that they had been visited by the polyclinic for an annual medical examination because they were allegedly registered at an AIDS center. The shocked client and his wife immediately visited the central polyclinic of Yangi-Khaet district to find out the reason for such visits and the disclosure of their medical status to their neighbors. However, the nurse they contacted stated that she had not visited them and had not disclosed the information to the neighbors. Because of this misunderstanding, the client and his wife appealed to the management of the outpatient clinic to stop further disclosure of confidential information.


Solution:
To resolve the incident, the client and his wife decided to contact their neighbors and find out who exactly had visited them in their absence. It turned out to be a nurse working with a general practitioner. After speaking with the nurse, the client and his spouse discussed the disclosure of medical status and possible consequences for the offender. The nurse promised that this situation would not happen again in the future. The nurse then went to the neighbors and explained that a mistake had been made and apologized for the inappropriate disclosure of confidential information.


Conclusion:


The described case is a serious violation of the principles of confidentiality of medical information. Disclosure of medical status without the patient’s consent is unacceptable and can lead to negative consequences for the patient, including violation of their rights and trouble in the community. In this case, the client and his spouse were able to resolve the issue by having an explanatory conversation with the nurse and neighbors. However, incidents such as these emphasize the importance of respecting the principles of medical confidentiality and the need to take appropriate measures to prevent similar breaches in the future.

Original Source (in Russian)


Also read:

Controversial healthcare procedure canceled after public outcry in Herzegovina-Neretva Canton

Survival Story: How an organization helped a woman overcome her HIV diagnosis and start a new life

Categories
Response stories

Survival Story: How an organization helped a woman overcome her HIV diagnosis and start a new life

Article about how ISHONCH VA HAYOT helped a homeless woman suffering from HIV to start a new life, accept her diagnosis, and become self-sufficient through support, counseling, and material aid.

The client’s life situation was strikingly tragic. Two years ago, she knew of her HIV diagnosis and did not accept it. The woman was at a loss and did not know how to go on. Her mood was low because of the unpleasant situation with her partner. It seemed that life had ceased to have any meaning and she was ready to give up on therapy.

ISHONCH VA HAYOT approached this case with the utmost care, understanding that her primary concern was to help her client to accept her diagnosis and learn to live a full life. They made contact with the client and tried to convey truthful information about living with HIV and discuss her moods and her past.

The woman talked about her difficult childhood, in which her parents constantly consumed alcohol. She also shared how her father’s friend almost raped her when she was young. The orphanage was no better, but the client was fed, slept in a soft bed, and was not beaten or molested. The client tried to do well in school, and eventually, she met a guy who took her into his family, where they had children.

When the woman contacted to ISHONCH VA HAYOT, she was homeless – evicted from the room she shared with her roommate. The organization did everything possible to help her: helped to get a room in the dormitory and dealt with her benefits. They found her a job and helped her start her business selling cakes at the clinic. They also provided financial assistance and legal advice on how to proceed.

The client was able to recover and start a new life. She began taking therapy and understood the importance of continuing it. The woman started attending group classes for people with HIV where she found support and understanding, exercised regularly, and takes care of her health. In addition, she is actively running her own business and has a steady income.

ISHONCH VA HAYOT continues to support her client and help her to live a full life. She was helped to get a subsidy to repair the home she bought herself and to arrange a wedding with her partner.

Currently, the client continues to live an active lifestyle and lives happily with her family. She proved to be a strong and resilient woman who coped with her challenges and succeeded in life. The organization is proud to have helped her through a difficult time and become happy and successful.

Original Source (in Russian)


Also read:

Controversial healthcare procedure canceled after public outcry in Herzegovina-Neretva Canton

Establish Rights-Respecting Laws: What Moldova Needs to Make a Difference and Combat Sex Work Discrimination

Categories
Response stories

Against discrimination and stereotypes of society: how REActors defend the rights of sex workers in Tajikistan

On November 9, 2018, the United Nations Committee on the Elimination of Discrimination Against Women (CEDOW) issued recommendations to Tajikistan, noting that contrary to the Committee’s proposal to abolish punishment for sex work, reports of intimidation, harassment, and violation of the rights of sex workers have increased. These women are being repressed for their work because of the “undermining of traditional values”. Moreover, administrative responsibility for this activity was also toughened (fines increased or arrests up to 15 days) as a necessity for the “fight against prostitution” and against the spread of HIV.

Society does not want to open its eyes to the fact that this is nothing more than a stereotype – according to the National Program to Combat the HIV Epidemic for 2017-2020 HIV prevalence among female sex workers was only 3.5%! And the main route of transmission of the virus in the country is heterosexual sexual intercourse (in some regions, the proportion of such cases has reached 70%). But for most law enforcement officials, medical center employees, and even acquaintances and relatives, sex work is a stigma and an evil that brings problems, and it should be punished. And the methods chosen for this, at times, turn out to be far beyond the legal field.

However, even given such unfavorable conditions, REActors in Tajikistan manage not only to record the facts of violations but also successfully help sex workers overcome the problems that have arisen and assert their rights.

“We all know about you!”

In January, one of the REActors received a call from Aziza (name changed). The girl was previously a sex worker, but at the time of the conversation she no longer provided services, lived in a hostel with a small child, and earned money by cleaning houses. One evening, two police officers came to them and asked the watchman to call Aziza. When the client asked what they needed, law enforcement officials began to intimidate the girl, saying that they knew about her positive HIV status and what she had been doing before. Further, blackmail began – either publicity or work for them and revealing the names of other sex workers. Aziza said that she had not provided sex services for a long time and could not know anyone. Then the police began to interrogate where and from whom she got infected, and who was her former clients. The client said she did not know this and was not going to talk to anyone. In response, threats followed, up to the initiation of a case for prostitution and deprivation of child custody. Not surprisingly, the next day, the girl took her daughter and ran away from the hostel. Having recorded everything, the REActor asked for the telephone number of the policemen who had come and called them. Introducing himself, he explained that he could follow their similar actions. Initially, they behaved aggressively, also threatening to be held accountable for aiding and concealing data. But when the paralegal said that they, too, had justice through complaints and statements to the Prosecutor and the police chief, they asked for a meeting. Then there were threats again, but the REActor insisted on his own. Hearing this, the self-defense method worked for the employees of the authorities, and they offered to call Aziza to meet all together and discuss further actions. On the spot, the client and the policemen gave their word that they would no longer interfere in her life and would not disturb the girl.

“I want to be with you so much…”

The REActors hotline received a call from Gesu (name changed). The girl asked for help – she was publicly beaten for being engaged in commercial sex. In a personal meeting, the client said that she had recently been with a young man. He liked her, and the guy offered to be with him all the time but was refused. Repeated attempts to again attract the girl to intimacy also turned out to be fruitless. One day the guy saw Gesa with another young man. After that, choosing the moment when she was returning home from her friend alone, he, along with a friend, blocked the path and the men began to pester her. The client asked to be released and tried to run away, but they started beating her. A woman was walking nearby, saw this, and called her neighbor, a district police officer in another territory. Upon arrival, the policeman smelled alcohol, began to separate them, but blamed Gesa for everything! Instead of detaining the rapists and fixing the violation, a law enforcement representative reproached that she had already been caught by the police once. Then he asked everyone to disperse and warned the girl that if this happens again, he will take her to the department.

The girl left in tears and beating. And then her call to the REAct hotline sounded. The paralegal immediately offered Gesа his help, contact the forensic examination and remove traces of beatings. He agreed. Together they underwent an examination in a forensic medical examination, took a conclusion, and then went to the police station and wrote a statement. He was registered, and at the same time, the client gave testimonies against the district police officer, who ignored the fact of the offense. The next day, Gesa was summoned to the police department. They drew up a protocol and opened a criminal case against the rapists. And the situation with the district police officer was taken under control by those responsible for the internal investigation.

Said, REActor, Tajikistan: “By proving the correctness of clients and the wrongdoings by the police, you become an experienced and authoritative defender of the rights of key groups. But you must remember that you need to speak with representatives of the authorities in the language of substantiated facts, then you can agree. The REActor must understand the differences between offenses and ordinary cases – I will not hide that each policeman, before starting a substantive conversation, first assesses the level of my knowledge. But for myself, I made a rule: once you start to defend, then fight to the end. Otherwise, you will lose both trust and authority.

Sex work is an activity like any other that requires acceptance and respect. And its representative – respect for the rights and non-discrimination to himself/herself and his/her choice.


Also read:

Spread of panic and false information about the increase in the number of people infected with HIV in Zaječar

The first judgment for discrimination based on sexual orientation in Bosnia and Herzegovina

Categories
News

3-Day Intensive: Country REActors Trained in Armenia

February 3-5, 2023, a training was held in Yerevan on documenting cases of violation of the rights of representatives of key populations, as a measure to counteract obstacles in the provision of HIV services. REActors of three national, public organizations of Armenia that are implementing the project in the country were invited to participate: New Generation, National Trans Coalition, and Eurasian Key Populations Coalition. The trainer of the event was Victoria Kalyniuk, Regional Coordinator of REAct.

Over the course of three days, the REActors had the opportunity not only to learn more about the work of the tool itself but were also involved in practical exercises on the definition of discrimination, the level of stigmatization, the analysis of the legal environment of the country and the study of the obligations of the state in protecting the rights of key groups.

“A significant part of the event was devoted to the practice of interviewing, to correctly document by REActors, first of all, sensitive topics. For example, about violence,” Victoria shares. “I also want to note that this training is different from the previous ones, as for the first time it presents a lecture on gender-based violence, its fixation, causes, and consequences. We have not done this before. I think this will be a good start for a series of similar professional training for REActors and other countries in the region where our project is being implemented.”


Also read:

Uzbekistan hosted a round table on the topic of reducing barriers related to the violation of the rights of key populations

Community-based monitoring in action: how REAct helps to detect human rights violations and solve systemic gaps in the provision of health services

Categories
News

Uzbekistan hosted a round table on the topic of reducing barriers related to the violation of the rights of key populations

On December 23, in Tashkent, the Republican non-governmental non-profit organization “ISHONCH VA HAYOT” organized an event aimed at the dialogue of civil society and government agencies on solutions to reduce barriers related to human rights violations among people living with HIV and vulnerable groups with increased risk for HIV infection.

On the part of departmental structures, representatives of the Republican AIDS Center, the Ministry of Health of the Republic of Uzbekistan, the Secretariat of the CCM, the Ministry of Internal Affairs of the Republic of Uzbekistan, the Ombudsman, the Ministry of Employment and Labor Relations of the Republic of Uzbekistan, the International Organization for Migration (IOM) in Uzbekistan, USAID, UNAIDS, as well as Civil Society Organizations and representatives of the PLHIV and KP community.

Particular attention at the round table was focused on the presentation of the work of “ISHONCH VA HAYOT” on documenting cases of human rights violations and responding to them, within the framework of the project “Reducing barriers related to human rights violations among people living with HIV and vulnerable groups of the population with increased risk of HIV infection and increased remote legal support for women who have been subjected to violence” (REAct).

“The collected data is not for accusations. We are only stating the fact that, alas, there are violations and we need to look for ways to solve them together to avoid such problems in the future.” – says Sergey Uchaev, Chairman of the Board of “ISHONCH VA HAYOT”. “I am sincerely glad that our research within the framework of the REAct tool has caused an adequate response from participants from government agencies – after all, the vast majority of violations are recorded precisely from their representatives. There was no denial, on the contrary, the understanding that there are gaps in these issues since not everyone has an understanding of how to work with key groups. For example, the Ministry of Internal Affairs of Uzbekistan has only recently created a department for working with the community of PLHIV – there are new employees, and they have a great interest both in prevention programs and in the field of patients’ rights. But knowledge is still lacking. Therefore, we agreed that for further, successful work, a constructive dialogue between civil society and government agencies is necessary. And for our part, we will support him in every possible way.

As a summing up of the round table, the participants adopted the key conclusions and recommendations based on the results of the annual report within the framework of the project “Reducing barriers related to the violation of human rights among people living with HIV and vulnerable groups of the population with an increased risk of HIV infection and increasing remote legal Support among Women Subjected to Violence” (REAct) to change the situation with the rights of key populations in Uzbekistan:

– Bring the norms of criminal legislation in line with the requirements of international human rights treaties. In particular, to consider the issue of the complete abolition of Art. 113 of the Criminal Code of the Republic of Uzbekistan.

– Bring the norms of criminal legislation in line with the requirements of international treaties on combating drug trafficking. In particular, consider creating an effective system of alternatives to punishment for crimes not related to the commercial sale of drugs, including the creation of a system for voluntary referral of people who use drugs to treatment and prevention services. To give clarifications to the Supreme Court of the Republic of Uzbekistan on the restrictive application of penalties to people who have committed acts not related to commercial sales.

– Consider the question of the complete abolition of Art. 190 of the Code of Administrative Offenses of the Republic of Uzbekistan (engagement in prostitution) and on the limited application of the norms of the Criminal Code relating to sex work (Articles 130, 131 of the Criminal Code of the Republic of Uzbekistan) only to cases of exploitation of prostitution and guided by the principle of non-punishment of the victim.

– Conduct mandatory information events with the participation of civil society organizations for employees of government agencies and medical institutions that interact with PLWH and representatives of other CGs, to constantly inform on issues about HIV infection, including clarification of points of scientific consensus regarding the possibility of transmission of HIV infection in those or other circumstances (use of a condom, ART, etc.), as well as clarification of the provisions of the Criminal Code of the Republic of Uzbekistan regarding the form of intent for crimes that are considered completed from the moment the acts were committed, regardless of the onset of consequences (Article 21 of the Criminal Code of the Republic of Uzbekistan), and the provisions Criminal Code of the Republic of Uzbekistan on the public danger of an act (Article 14 of the Criminal Code of the Republic of Uzbekistan).

– Conduct consultations with health authorities to ensure that registration does not affect the ability to receive health care services citizens. – Conduct regular information and training activities with police officers, lawyers, and judges on the work within the framework of the implementation of the Palermo Protocol including the need to follow a rights-based human principle is not punishment of the victim, which primarily includes the creation of conditions for the protection of the rights and exclusion of punishment for sex workers to effectively combat human trafficking, based on the recommendations of the United Nations Coordinating Group on Combating Trafficking in Persons.

Recall, as of the end of 2022, 13 REActors of Uzbekistan recorded 797 complaints about violation of the rights of representatives of key groups since the start of the pilot project in 2020.


Also read:

Regional meeting: Sustainability of the response to HIV in Albania, Bosnia and Herzegovina, Montenegro, North Macedonia and Serbia. Experience of Moldova in the implementation of REAct system

Community-based monitoring in action: how REAct helps to detect human rights violations and solve systemic gaps in the provision of health services

Categories
News

Fight for people’s minds! REAct’s best practices in the human rights advocacy on the Frontline AIDS partners meeting

On the December, 1 Frontline AIDS hold a webinar for a group of partners from Uganda, Nigeria, South Africa, Zimbabwe, and Namibia that received funding in 2022 to pilot emergency response mechanisms in their countries/regions. REAct was invited on this event as well to share its real-life best examples of advocacy implementation in the EECA region, in particular, changes in human rights system and improving of access to HIV services for key group populations.

To date, more then 13 thousand cases have been registered through the REAct system and in this process involved 174 NGOs and 363 REActors all over the EECA region. “Our tool implemented on different levels. On individual one database has to be followed up with some hotline services or emergency phone numbers, because our clients need an immediate support.” – says Victoria Kalyniuk, REAct Coordinator in EECA region. “Then letters, statements and court cases finally. However, the number of these cases is low, unfortunately, due to stigma and discrimination. Clients are not ready to go to the court, they do not trust system. But all the time when REActors talk to the representatives of police, medical or government structures, they influence on attitude to the key groups. That’s also an advocacy method.”

Participants of the webinar expressed an interest in learning more about tool implementation on local and national levels as well. Victoria shares some examples and best practices in region, e.g., in Tajikistan people, who live with HIV face with stigma and discrimination on the domestic level (relatives, partners etc.). REActors in this country choose the way to talk with perpetrators to explain that HIV can be treated and people are not dangerous. Another one good practice on the national level was in 2020 in Moldova. REActors found that there was a discrimination of HIV positive pregnant women in maternity hospital. They were informed that all cases were in the same hospital, from the same medical staff. After the dialog with the head management of that institution, the question was closed successfully. 

“There was a great case in Kyrgyzstan” – shares Victoria. “We heard that the police hunts on the clients of OST sites. It became a big barrier for that people, they were just afraid to go there and take therapy. As a result, REActors prepared a letter to a Minister of Internal Affairs and got a response that the situation will be under control on the high level and an internal investigation will be held. That letter was printed and distributed through OST sites and clients. Each time, when the person was obtained by a policeman, he or she showed its copy in the way, like: «Are you sure that you want to do that, because your management will know about it very soon». It helped a lot!

Speaking about best practices on a national level, you should remember that work with stakeholders and presenting your data is must! We collaborate with NGOs, governments, prepare publications and every year implement a new advocacy campaign. Definitely, it takes time to make changes and seems as a top of iceberg, but keep fight for people’s mind! It works!”


Also read:

Regional meeting: Sustainability of the response to HIV in Albania, Bosnia and Herzegovina, Montenegro, North Macedonia and Serbia. Experience of Moldova in the implementation of REAct system

Community-based monitoring in action: how REAct helps to detect human rights violations and solve systemic gaps in the provision of health services

Categories
Response stories

Spread of panic and false information about the increase in the number of people infected with HIV in Zaječar

In 2021, 120 persons newly infected with HIV were registered in Serbia. As in previous years, the largest number of those comes from the MSM population (98% of all those tested).

During the spring of 2022, the news about 20 people suffering from AIDS was shared among young people in Zaječar. Week after week, the news continued to spread like gossip that the number eventually reached 250 AIDS patients, without any corroborating information. The mentioned figure of 250 people represents a number of 100% more infected than the number of infected in the entire country of Serbia on an annual level of 7 million inhabitants, and that in just one city of 40,000 residents. In 2021, 2 HIV-positive people were registered in Zaječar, and the number of 250 would potentially bring Zaječar to the position of a hotspot in Serbia when it comes to HIV-infected people.

TOC* organization wanted to prevent the spread of gossip by publishing educational carousel posts on social media about what HIV is, what AIDS is, what the difference is, how someone can get HIV and how to protect themselves from HIV infection etc. At the end of August and the beginning of September, information began to be shared on social networks, within which the targeting of certain female persons as persons infected with HIV and “sharing AIDS” began. Their names and surnames, as well as photos, began to be shared on social networks, and then the news reached the tabloids. At that moment, the TOC team realized that it was not possible to react only with educational announcements through gossip and targeting, there was also a violation of human rights.

On September 8, the TOC team first contacted a lawyer, and then on September 9, it published a statement in which it invited all injured/targeted persons to contact the TOC team to connect them with the legal team and to initiate a lawsuit for defamation and the honor of the girls who were targeted without any basis or evidence, i.e., lawsuits for a committed criminal offense presenting personal and family circumstances from Article 172, Paragraph 3. In connection with Paragraphs 1 and 2 of the Criminal Code. Also, a compensation claim was filed with the court, in which the injured girls sought compensation for non-material damages for the mental pain they suffered due to the injury to their honor and reputation.

After gathering power of attorney and evidence, and several meetings with a lawyer, on November 16, a lawsuit was filed with the Basic Court in Zaječar. The procedure is currently ongoing, and we will write about its outcome when it comes to an end.

The TOC team believes that it was necessary to react primarily to prevent the unfounded targeting of young people and damage to their reputation and honor, but also to prevent the further spread of false information about the ways of contracting HIV, above all to divert attention to the problem of discrimination faced by HIV-positive people in Serbia, not only by society but also by institutions that should primarily protect the rights of citizens as well.

TOC hopes that the positive outcome of this story will encourage others not to remain silent about the problems they face in terms of human rights violations, and TOC, in cooperation with its partners, will, if necessary, provide all the necessary support to people who believe they have suffered some form of discrimination or human rights violations.

*Timok Youth Center – TOC is a nonpolitical, nonprofit, nongovernmental – civil society organization, set up for an indefinite time to achieve its mission to actively work on the increase of the development of civil society in Serbia, with a special focus on youth.

TOC is founded in 2004 as an organization that deals with the issues of youth policies, development, and support of youth initiatives, encouragement, and guidance of active youth participation in their local communities, as well as the affirmation of healthy lifestyles among young people. The organization has become recognized as a leading organization in the field of activities of local and regional youth coalitions. It is known as a leader in youth policy and support to civil society organizations, non-formal groups, and volunteers.


Also read:

Helping hand of Kyrgyz street lawyers for women living with HIV

The first judgment for discrimination based on sexual orientation in Bosnia and Herzegovina

Categories
Response stories

Helping hand of Kyrgyz street lawyers for women living with HIV

More than 25 years have passed since the first case of HIV was registered in Kyrgyzstan. As of August 1, 2021, there are 10,807 people living with HIV in the country. And although the presence of the virus has long been no longer a sentence, for all the time only a few have revealed their status. The reason lies on the surface – a greater number of PLHIV are in no hurry to speak openly about themselves, as they are afraid of discrimination, humiliation and insults in their direction. In 2020-2022 alone, the REAct system in Kyrgyzstan registered more than 2,000 complaints about violations of the rights of representatives of vulnerable groups. Of these, over 20% (483 cases) where the victim is a person living with HIV. REAct, together with the Partner Network Association and the Soros Foundation-Kyrgyzstan, is working on documenting cases and providing real assistance to representatives of key groups in order to protect and defend their rights. 15 NGOs that participate in the Street Lawyers project and are located in different cities and regions of the country are constantly monitoring the situation and looking for ways to successfully resolve them.

You live in my flat, so you owe me!

This fall, one of the street lawyers was approached by Safiya (name changed). The girl lives with HIV, worked as an assistant cook in a cafe, but she did not tell anyone at work about her status. Due to the fact that there was no own housing, at some point she moved to a young man with whom she had been in a civil marriage for the past few years.

One evening, her drunken husband came to her work, called her out of the kitchen and demanded that Safiya “arrange” him a table with barbecue and liquor. The client said that she would not do this, because this is an expensive cafe and she does not want to work off this money later. The man began to shout that she lives in his flat, which means she owes him. The security guard of the cafe reacted to it and asked him to leave the place and not draw attention to himself. However, the man refused to leave, ordered 200 grams of cognac and sat down at the bar. Safiya returned to the kitchen and continued to work. Two hours later, the man, having got pretty drunk, made a scandal, started shouting that HIV-positive people, drug addicts and prostitutes work in the institution. The security guard, thinking that the girl could convince her man to leave the cafe, turned to her. The client went into the hall, tried to talk to him. In response, he started beating Safiya and publicly disclosing her HIV status. The guards came running to the screams. The girl was hidden in the kitchen, the police were called, and when they arrived at the place, the guard told them about everything that happened.

Instead of recording everything and taking testimony, the law enforcement officer refused to accept the girl’s statement, citing the fact that in the morning the man would wake up sober and good, and the girl would come running to collect the statement. She will also accuse police officers of inappropriate treatment of her husband. Therefore, he suggested that the administrator of the cafe write a statement against the man and he was only charged with the article “hooliganism”. The fact that he publicly beat the girl and revealed her HIV status, no one even began to take into account! The administrator of the institution refused to write a statement, she said that she did not want trials. The next morning, Safiya was fired from her job, and the man kicked her out of the house.

Real help is nearby

The street lawyer provided the girl with consultations on the topics: “Know your rights”, “Eradication of stigma and discrimination”, “Criminal liability for public disclosure of HIV status”. After that, he arranged for her temporary residence in a shelter that accepts women who suffered from violence. In his own car, the lawyer drove with the client to the house where she lived, so that Safiya took away personal stuff. Later, he gave her a food package and took her to a shelter, where the girl was provided with free accommodation and consultations with a professional psychologist. Now the client is involved as a volunteer of the organization and as a paid employment she is offered to clean the offices of several friendly organizations, thanks to which she can earn about 7,000 soms per month. Alas, she refused to write a statement, because she does not believe that the laws work, that this can give a result and her former partner will be punished. Although the case of Safiya is a violation of human rights in terms of the failure of police officers to fulfill their duties to detain the culprit for hooliganism. The situation can be changedwhen people living with HIV are confident that their rights are similar to others, and stigma and discrimination in society are prevented by raising public awareness, passing laws that protect human rights, and developing free legal services and access to them by members of the community.

For reference:

The Street Lawyers initiative was launched in 2016 in response to actual problems of vulnerable groups. Street lawyers are trained employees of non-governmental organizations in Kyrgyzstan, representing and defending the interests of vulnerable groups, key in the context of curbing the HIV epidemic. In the future, street lawyers were renamed “public defenders”.

This project helps people who are in a difficult life situation. Difficulties in obtaining documents, problems with access to medical services, abuse of authority by law enforcement officers are the main of the many barriers faced by representatives of key populations. A successful case is when a person realizes that his violated rights have been restored. He feels like a full citizen. The problem was solved through negotiations and achieve for the client the restoration of his rights. The main task of street lawyers is mediation. Public defenders act as a conductor between the client and government agencies.


Also read:

It’s good to be alive or why self-stigma is such a high price to pay for violence against sex workers

The first judgment for discrimination based on sexual orientation in Bosnia and Herzegovina

Categories
Response stories

Change for the better: how REActors and government agencies in Tajikistan are jointly changing the situation with human rights violations in the country

The HIV epidemic in Tajikistan is usually divided into three phases: the first lasted from 1991 to 2000, during which time only 37 cases were registered in the country. The second, from 2000 to 2011, is considered to be a period of escalation, when the number of officially registered HIV cases increased by 77 times. The third phase, stabilization, lasted from 2011 until the end of last year, when the growth in distribution increased by 3.3 times. However, if the issue of HIV today can be named controlled, then the level of stigma, non-recognition and discrimination of key groups by the society, until recently, remained extremely high. So far, thanks to the joint efforts of officials and activists, the situation was changed.

The system is hard to change. But you can.

“The case when in front of everyone in line for an analysis, a doctor could shout to a person: “Do you have HIV? Come quickly!”, alas, was not rare. And this is just one of many like it.” – says Farishtamokh Gulova, national coordinator of the REAct system in Tajikistan. According to her, the situation with the violation of the rights of vulnerable groups of the population by medical personnel was extremely difficult: the status of people was disclosed, personal data was transferred to third parties, there was neglect and contempt, especially towards representatives of LGBT and MSM communities. Activists registered these cases, tried to “reach out” to medical staff, including at a higher level, however, the desired reaction did not follow. Until the moment when a new leadership came to the AIDS Center of Tajikistan. Deputy Director – Mr. Alijon Soliev, previously worked in projects himself, was engaged in volunteering, therefore, when he learned about such cases, he immediately showed readiness to cooperate with civil society and determination to stop such offenses by medical personnel.

Let’s act together!

In June of this year, REActors were able to discuss the most common situations with Mr. Soliev. So, one of them took place in the area of republican subordination, the city of Tursunzade. The wife of a person living with HIV received a call and was told, “Your husband has the virus, you should come with your children and get tested. You need to understand whether you have HIV or not.” At that time, the woman did not know about his status – he was in migration. Upon his return, the man talked to his wife, but the infectious disease specialist continued to call her and bother her with demands to come. This made husband very angry; he did not want his wife to be told about HIV in such a tone and decided to find out everything himself. Upon arrival at the local AIDS Center, there was a conflict: instead of an apology, the epidemiologist got rude to the man. He fixed everything and turned to the REActor for help. According to Farishtamokh, she told Mr. Soliev about this case on Saturday, and on Sunday he gathered all the doctors for an online meeting. As a result, the doctor who created a conflict situation and disclosed the man’s HIV status was reprimanded.

Another case of status disclosure involved a trans person from the Khatlon region. She returned from Russia in July, got registered in Dushanbe, received ARV therapy for three months and left to work in Turkey. The family did not know about her HIV status and would have remained so if the laboratory assistant at the AIDS center had not been a relative and had not recognized her. For disclosure of the status of the client, and negligence, the employee was reprimanded. Of course, such cases help to improve activities in the regions and increase the level of information on all sides of the situation. Lack of experience and mentality play an important role in ALL patient care cycles in AIDS centers.

“Mr. Soliev asked to be immediately reported if even the slightest offense is recorded: refusal to issue certificates or certificates, negligent attitude to tests, rude treatment when issuing ARV drugs…” Farishtamokh adds. “We are well aware that top management cannot control everything – there are 66 AIDS centers in the country, but thanks to the work of REActors, it has become possible to identify and correct the situation.”

“Obviously, civil society in Tajikistan is now being heard and seen. We are invited, we are consulted – it means a lot.” – Pulod Jamolov, head of the SPIN Plus organization, comments on the situation. “And I can confidently say that such cooperation between the authorities, represented by representatives of medical structures and civil society, together with REActors, really changes the situation within the country.”


Also read:

It’s good to be alive or why self-stigma is such a high price to pay for violence against sex workers

The first judgment for discrimination based on sexual orientation in Bosnia and Herzegovina